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SS and Albinism?   Message List  
Reply | Forward Message #428 of 811 |
Re: [Stickler Syndrome ] SS and Albinism?

hello. I have a little boy who will be four in august. Last year he was dx
with Occular Albinism. We havent seen our eye spec in a few months, so I dont
know where that will take us. Good luck.
~Casie mom to skyler prs ss trached 9/02, decanned 5/06, former gtuber,
cleft repaired, glaucoma, reflux. Occular albinism.


[Non-text portions of this message have been removed]
Fri Jun 9, 2006 2:14 pm

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skyguysmommy
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Forward 		Message #428 of 811 |
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Bryn was just dx'd with Albinism, are there any other kids with both PRS/SS and Albinism?... 		jennaevmooney
Offline Send Email 		Jun 8, 2006
3:44 pm

most of my family has been dx'd w/ SS, but no one has been dx'd w/ Albinism then again, most of that side of my family is part black... ... [Non-text portions...
Carrie Martin
carebare180
Offline Send Email 		Jun 8, 2006
6:33 pm

hello. I have a little boy who will be four in august. Last year he was dx with Occular Albinism. We havent seen our eye spec in a few months, so I dont know...
mikeandcasie@...
skyguysmommy
Offline Send Email 		Jun 9, 2006
2:35 pm

hello. my brother had his cleft repaired when he was 2 i believe, but he is now 7 and having to undergo further surgery. just out of curiosity...did they...
Carrie Martin
carebare180
Offline Send Email 		Jun 9, 2006
5:01 pm

There are several forms of albinism. Ouuclar usually affects only boys. My daughter has the type where she still has mild colouring (her eyes are grey, her...
jennaevmooney
Offline Send Email 		Jun 10, 2006
2:08 am
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