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SS and Albinism?   Message List  
Reply | Forward Message #427 of 811 |
Re: [Stickler Syndrome ] SS and Albinism?

most of my family has been dx'd w/ SS, but no one has been dx'd w/ Albinism
then again, most of that side of my family is part black...

On 6/8/06, jennaevmooney <jennaev@...> wrote:
>
> Bryn was just dx'd with Albinism, are there any other kids with both
> PRS/SS and Albinism?
>
>
>


[Non-text portions of this message have been removed]




Thu Jun 8, 2006 6:32 pm

carebare180
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Message #427 of 811 |
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Bryn was just dx'd with Albinism, are there any other kids with both PRS/SS and Albinism?...
jennaevmooney
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Jun 8, 2006
3:44 pm

most of my family has been dx'd w/ SS, but no one has been dx'd w/ Albinism then again, most of that side of my family is part black... ... [Non-text portions...
Carrie Martin
carebare180
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Jun 8, 2006
6:33 pm

hello. I have a little boy who will be four in august. Last year he was dx with Occular Albinism. We havent seen our eye spec in a few months, so I dont know...
mikeandcasie@...
skyguysmommy
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Jun 9, 2006
2:35 pm

hello. my brother had his cleft repaired when he was 2 i believe, but he is now 7 and having to undergo further surgery. just out of curiosity...did they...
Carrie Martin
carebare180
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Jun 9, 2006
5:01 pm

There are several forms of albinism. Ouuclar usually affects only boys. My daughter has the type where she still has mild colouring (her eyes are grey, her...
jennaevmooney
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Jun 10, 2006
2:08 am
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