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Reply | Forward Message #404 of 811 |
Hello, My name is Michelle and I am 21 and was diagnosed with
Sticklers when i was 14. I was born with visual impairments (High
Myopia, and Macular Degeneration) but the doctors didn't think it was
related to anything else health wise until I was 14. When i was 14 i
started having trouble with my joints and finally the doctors did all
the tests and figured it out. Since than I have had 2 shoulder
replacements on both shoulders, 2 back surgeries for collasped discs
and had a soft spot on my skull removed. I am extremly interested in
talking with others who are sharing the affects of sticklers.
Michelle







Fri Apr 21, 2006 5:22 am

michele_slig...
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Message #404 of 811 |
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Hello, My name is Michelle and I am 21 and was diagnosed with Sticklers when i was 14. I was born with visual impairments (High Myopia, and Macular...
Michelle
michele_slig...
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Apr 21, 2006
5:22 am

Hi Michelle. My name is Heather. I found out only 3 years ago that I have Stickler Syndrome. I also am severly nearsighted & have had 10 laser surgeries for...
matt russell
mattnheatherr
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Apr 21, 2006
5:42 am

Hi to Michelle and Heather! My name is Joni. I do not have sticklers, but my husband, sister-in-law, mother-in-law, and youngest son do. I do have a 4 year old...
Joni Trout
jonitrt
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Apr 21, 2006
3:16 pm

Joni My daughter Kayla is 11. My other daughter Paige is 10 & has had one laser surgery on her right eye for retinal tears. I to have a younger daughter...
matt russell
mattnheatherr
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Apr 22, 2006
3:39 pm

Michelle I am 28 years old and was dx'd this year with Sticklers. My daugter has PRS also, my son just sticklers. I have had 8 jaw surgeries, ranging from mild...
jennaevmooney
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Apr 24, 2006
9:58 pm

I totally understand with doctors not being able to explain why it is happening. Every doctor I have gone to here in Indiana, I have had to tell them about it...
Michelle
michele_slig...
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Apr 25, 2006
2:30 am

Michelle, I also live here in Indiana. I am in Carmel. I pretty much drive into Columbus, Ohio for all the specialist. I however do use Midwest Eye...
matt russell
mattnheatherr
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Apr 25, 2006
11:30 am

I live in the Noblesville/fishers area. I have stop going to the eye doctor even though I should go, because whenever i see a change in vision they always tell...
MICHELLE SLIGER
michele_slig...
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Apr 25, 2006
2:37 pm

michelle i have similar experiences to share i would love to talk to you angeleyes236290@... or (352)428-0693 or (618)549-9583 MICHELLE SLIGER...
Nicole King
angeleyes236...
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Apr 27, 2006
10:51 pm

again nicole reichrath here with similar problems i would like to share my advice and stories but due to carpal tunnell it would be easier to get calls...
Nicole King
angeleyes236...
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Apr 27, 2006
10:56 pm

... share my advice and stories but due to carpal tunnell it would be easier to get calls (352)428-0693 or (618)549-9583 angeleyes2362901@... ... daugter ... ...
dspigener
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Aug 20, 2006
4:18 am
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