Hello! My name is Lachelle and I have a 3 yr old little boy that has
a submucous cleft. He definitely has PRS, but we've never gotten a
sure diagnosis of Stickler's because he does not have vision, hearing,
or joint problems. But his speech is being greatly affected by the
cleft, and we are fairly sure we are looking at another surgery. The
problem comes in here: he still has a mickey button, from earlier
feeding issues, but we haven't used it in about 2 months. We are
going to see the surgeon tomorrow about button removal. Question:
Has anyone had any experience with the cleft repair surgery and
recovery times? I'm afraid they won't remove the button if he needs
surgery on his mouth.