I am a type III mother and parent suffering with sticklers 9 yr old boy also had
retinal detachment would love to chat most of my family has sticklers

Becky <becmorhei@...> wrote: Hello, my son has has stickler syndrome he
is now 10 years old and is doing well. He has the deletion of 25 base pair in
the cDNA positions 2586-2610 in the Col2A1 gene. He was born with pierre-robin,
cleft palate and sleep apnes due to his tongue being tied. He has had a
mastoidectomy due to ear infections and a retinal detachment 2 years ago. If
this is similar to what you are going through just let me know and we can chat.
just email me at becmorhei@... take care..

jennaevmooney <jennaev@...> wrote: I was just wondering if there are
any type III kids here?







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