Hello, my son has has stickler syndrome he is now 10 years old and is doing
well. He has the deletion of 25 base pair in the cDNA positions 2586-2610 in
the Col2A1 gene. He was born with pierre-robin, cleft palate and sleep apnes
due to his tongue being tied. He has had a mastoidectomy due to ear infections
and a retinal detachment 2 years ago. If this is similar to what you are going
through just let me know and we can chat. just email me at becmorhei@...
take care..

jennaevmooney <jennaev@...> wrote: I was just wondering if there are
any type III kids here?







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