Hi Jane

Thank you for being so open about that. It makes me feel better about the
future for my little girl. We have the same out look on how she needs grow
up. I have always known that her life would not be easy but I know it will
be a good and fulfilling one. She is am amazing child that has adapted to
her visual limitations well.

Again thank you.



BTW I grow up ridding and I am trying to get Mac into a ridding school now.
I think it will do wonder for her.



Tony Sizemore


<file:///C:\Documents%20and%20Settings\tony\Application%20Data\Microsoft\Sig
natures\www.tsizemore.dns2go.com> www.tsizemore.dns2go.com

"Could we change our attitude, we should not only see life differently, but
life itself would come to be different. Life would undergo a change of
appearance because we ourselves had undergone a change of attitude."

Katherine Mansfield

1888-1923, Writer

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From: sticklersyndrome@yahoogroups.com
[mailto:sticklersyndrome@yahoogroups.com] On Behalf Of laeticia_demorte
Sent: Thursday, December 08, 2005 5:20 PM
To: sticklersyndrome@yahoogroups.com
Subject: Re: [Stickler Syndrome ] My Story



Hi Tony

I have thought about this question, and as I have told other 'parents', the
people who
suffer most are YOU. As the patient we get the attention and the fuss,
unfortunately it is
you who feels helpless and unable to do anything.

It is not always a walk in the park as a kiddie with sticklers, there are
some unpleasnat
things with clefts and eys etc..... but

My vision itself has never been a problem in that I know there are things I
can't see when
others can, but you can compensate a little, such as on days out carry a
powerful
monocular, carry a magifying glass (tiny pocket one) the main thing is not
being able to
drive, this I believe is a handicap in life But nothing we can do, just get
the free bus pass!

As a child my parents encouraged me to be quite outgoing, I wasn't afraid to
sit at the
front in class or ask for the notes if I couldn't see the board, (didn't
always get them!) I
always asked questions, and if the answers weren't right I asked some more,
help your
little 'un to be outgoing, I have never been afraid to say "I can't see
that"..... and let her
have a reason ready for the smart arses! (I am partially sighted... hehe the
amount of times
I've made someone cringe.. deservedly>)

I do not feel that I am at a real disadvantage with my vision, but at the
same time that isn't
surprising, I don't know how anyone else sees.

Give your daughter every opportunity you can (as I am sure you will anyway)
and she will
make her way through life, there are hardships in every life, ours are just
different but
there is a way.... and one way or another we get there, our vision is what
we are used to,
we cannot imagine how it is for others and so then there has been no
comparisons.

I always say life is what you make it and a big part of making my life as
special and
wonderful as it is has been because of my wonderful parents..... you are
here asking
questions because you are obviously special wonderful parents already.

Lots of love and wishes
jane - in wet old Wales

BTW = I do horse riding because my folks were told I'd never play ball
games... "teach her
something where she doesn't have to see that much." - horses are my first
love..... horse
back riding is what I do.






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