I go once a year to have my vision checked by a very good surgeon, recommended
by
Moorfiels eye hospital in London, I used to go there, was lucky enough to meet a
fab eye
doc as a child who said you have to go to Moorfields.


--- In sticklersyndrome@yahoogroups.com, "Nicole" <angeleyes2362901@y...> wrote:
>
> -Vision has to be checked regularly by retinal specialist my 8 year
> old is blind in left eye because it was not checked regularly I've
> had glasses since 2 myself and now at 26 have glaucoma
>
>
>
>
> -- In sticklersyndrome@yahoogroups.com, "Tony Sizemore"
> <tsizemore@n...> wrote:
> >
> > Jane
> >
> > Thank you for sharing your story. I do have a question for you if
> you don't
> > mind. My little girl has very low vision like you, but she is only
> 2. Have
> > you had very much trouble getting along with your vision?
> >
> >
> >
> > Tony Sizemore
> >
> >
> > <file:///C:\Documents%20and%20Settings\tony\Application%
> 20Data\Microsoft\Sig
> > natures\www.tsizemore.dns2go.com> www.tsizemore.dns2go.com
> >
> > "Could we change our attitude, we should not only see life
> differently, but
> > life itself would come to be different. Life would undergo a
> change of
> > appearance because we ourselves had undergone a change of
> attitude."
> >
> > Katherine Mansfield
> >
> > 1888-1923, Writer
> >
> > _____
> >
> > From: sticklersyndrome@yahoogroups.com
> > [mailto:sticklersyndrome@yahoogroups.com] On Behalf Of
> laeticia_demorte
> > Sent: Sunday, December 04, 2005 1:45 PM
> > To: sticklersyndrome@yahoogroups.com
> > Subject: [Stickler Syndrome ] My Story
> >
> >
> >
> > Hi
> >
> > I haven't posted in a long while but wanted to pass on what I have
> learned
> > regarding hip
> > replacement.
> >
> > I am 38, was born with prs, cleft palate and poor eyesight. I was
> 14 when my
> > retina
> > detached and sticklers was diagnosed at the eye hospital. Have had
> another
> > deatchment
> > since then in the other eye. My good eye is -17.5. In my early
> 30's I
> > really started to
> > notice hip pain, Had arthrograms and arthroscopies that did
> nothing to help,
> > I was severe
> > bone-on-bone with osteoarthritis.
> >
> > Much research told me about hip resurfacing, this is a bone
> conserving
> > alternative to
> > conventional thr - look at this x-ray to see the difference
> between the two
> > procedures
> >
> > http://www.smj.org.uk/0205/metal%20fig1.htm
> >
> > The technique has been used here in UK in it's modern form since
> 1991 with
> > continued
> > success, it is designed for young active people and there is
> speculation
> > that these joints
> > could last a lifetime, if they don't then revision to a total hip
> > replacement is just like
> > having a primary hip done. The most well known of the resurfacing
> devices is
> > known as
> > The Birmingham Hip, because it was developed by two surgeons in
> Birmingham
> > UK.
> >
> > Well I have had both of my hips done this way, I have had no
> restrictions at
> > all post-op
> > and can honestly say that this last year has been the best I have
> had in
> > many years, no
> > pain and back to being very active, horse riding, walking and I
> can run
> > properly for the
> > first time in my life.
> >
> > The procedure is done by some wonderful US surgeons, but you must
> discuss it
> > with a
> > surgeon who does both procedures or they will often give you out-
> of-date
> > information.
> >
> > If anyone needs a new hip then I would urge you to investigate this
> > procedure, it is life
> > changing. You can start your research with these sites
> >
> > http://www.midmedtec.co.uk/index.htm (tells you what it is)
> >
> > http://www.ActiveJoints.com (excellent informative site)
> >
> > http://health.groups.yahoo.com/group/surfacehippy (a great
> discussion
> > group)
> >
> > http://www.hip-clinic.com (a brilliant surgeons site)
> >
> > http://www.thehipclinic.co.uk/resurfacing.aspxI (another
> brilliant surgeons
> > site in UK)
> >
> >
> > hope this helps someone like it has helped me
> >
> > jane - in Wales UK
> >
> >
> >
> >
> >
> >
> >
> >
> > _____
> >
> > YAHOO! GROUPS LINKS
> >
> >
> >
> > * Visit your group "sticklersyndrome
> > <http://groups.yahoo.com/group/sticklersyndrome> " on the web.
> >
> > * To unsubscribe from this group, send an email to:
> > sticklersyndrome-unsubscribe@yahoogroups.com
> > <mailto:sticklersyndrome-unsubscribe@yahoogroups.com?
> subject=Unsubscribe>
> >
> > * Your use of Yahoo! Groups is subject to the Yahoo!
> > <http://docs.yahoo.com/info/terms/> Terms of Service.
> >
> >
> >
> > _____
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>