-Vision has to be checked regularly by retinal specialist my 8 year
old is blind in left eye because it was not checked regularly I've
had glasses since 2 myself and now at 26 have glaucoma




-- In sticklersyndrome@yahoogroups.com, "Tony Sizemore"
<tsizemore@n...> wrote:
>
> Jane
>
> Thank you for sharing your story. I do have a question for you if
you don't
> mind. My little girl has very low vision like you, but she is only
2. Have
> you had very much trouble getting along with your vision?
>
>
>
> Tony Sizemore
>
>
> <file:///C:\Documents%20and%20Settings\tony\Application%
20Data\Microsoft\Sig
> natures\www.tsizemore.dns2go.com> www.tsizemore.dns2go.com
>
> "Could we change our attitude, we should not only see life
differently, but
> life itself would come to be different. Life would undergo a
change of
> appearance because we ourselves had undergone a change of
attitude."
>
> Katherine Mansfield
>
> 1888-1923, Writer
>
> _____
>
> From: sticklersyndrome@yahoogroups.com
> [mailto:sticklersyndrome@yahoogroups.com] On Behalf Of
laeticia_demorte
> Sent: Sunday, December 04, 2005 1:45 PM
> To: sticklersyndrome@yahoogroups.com
> Subject: [Stickler Syndrome ] My Story
>
>
>
> Hi
>
> I haven't posted in a long while but wanted to pass on what I have
learned
> regarding hip
> replacement.
>
> I am 38, was born with prs, cleft palate and poor eyesight. I was
14 when my
> retina
> detached and sticklers was diagnosed at the eye hospital. Have had
another
> deatchment
> since then in the other eye. My good eye is -17.5. In my early
30's I
> really started to
> notice hip pain, Had arthrograms and arthroscopies that did
nothing to help,
> I was severe
> bone-on-bone with osteoarthritis.
>
> Much research told me about hip resurfacing, this is a bone
conserving
> alternative to
> conventional thr - look at this x-ray to see the difference
between the two
> procedures
>
> http://www.smj.org.uk/0205/metal%20fig1.htm
>
> The technique has been used here in UK in it's modern form since
1991 with
> continued
> success, it is designed for young active people and there is
speculation
> that these joints
> could last a lifetime, if they don't then revision to a total hip
> replacement is just like
> having a primary hip done. The most well known of the resurfacing
devices is
> known as
> The Birmingham Hip, because it was developed by two surgeons in
Birmingham
> UK.
>
> Well I have had both of my hips done this way, I have had no
restrictions at
> all post-op
> and can honestly say that this last year has been the best I have
had in
> many years, no
> pain and back to being very active, horse riding, walking and I
can run
> properly for the
> first time in my life.
>
> The procedure is done by some wonderful US surgeons, but you must
discuss it
> with a
> surgeon who does both procedures or they will often give you out-
of-date
> information.
>
> If anyone needs a new hip then I would urge you to investigate this
> procedure, it is life
> changing. You can start your research with these sites
>
> http://www.midmedtec.co.uk/index.htm (tells you what it is)
>
> http://www.ActiveJoints.com (excellent informative site)
>
> http://health.groups.yahoo.com/group/surfacehippy (a great
discussion
> group)
>
> http://www.hip-clinic.com (a brilliant surgeons site)
>
> http://www.thehipclinic.co.uk/resurfacing.aspxI (another
brilliant surgeons
> site in UK)
>
>
> hope this helps someone like it has helped me
>
> jane - in Wales UK
>
>
>
>
>
>
>
>
> _____
>
> YAHOO! GROUPS LINKS
>
>
>
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>
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>
>
> _____
>
>
>
> [Non-text portions of this message have been removed]
>