Corine :)
hello! I am Casie, 24, almost 25 mom to a 3 year old. I was diagnosed at 21
with sticklers and my son was diagnosed at birth with stickelrs and PRS,
pierre robin.
Do you have PRS?? you mentioned you were looking into it being passed
on...what did you find out, and diid you guys decide to have a baby??
I would love to answer any ?'s you may have ... tho i havent had some of the
problems you have... i am still waiting for them :) i guess being prepared
is a good thing..tho its scary!
hope you are well.
Casie mom to skyler
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