>Hi! Sticklers is a 50% 50% thing so there is a chance your baby
won't have it. To see my sons eyes when he was younger it took 3 or
4 people to hold him down as they looked in his eyes w/ an eye
speculum. Sorry I have no answer to the question you asked but I'll
keep you in my thoughts & prayers.
>

> Amber, glad to hear it went well. But sad to hear they had to have
the surgery. Both of them on the same day?? OH man LOL. How old are
they again?
> My boy Skyler willbe 3 in two weeks. And i found out a week and a
half ago that we are going to have another baby in April. We are
expecting Sticklers, but are hoping that the Pierre Robin will be
absent from this one :) Keep us in your htoughts.
>
>
> I did have a question tho. Skyler is still seeing poorly, tho now,
he has this fear of docs, so at our last clinic appt, no one really
got a good look at him, cause at 5ft away, he was freakin out!! poor
thing. anyways, the doctor mentioned again this occular albinsm
thing, and no macular reflex...and that he had anohter patient with
Marshal-sticklers with the same thing....
>
> so my ? to you guys, do any ofyour kids have a poor or none at all
Macular reflex, that the doc may have mentioned occular albinisim??
I am very curious now to as is it realated to Sticklers maybe??
>
> alright, take care,
> Casie mom to Skyler 35 months, PRS SS Trach former Gtuber,
resolved Glaucoma, Hypotonia-but walking now, Repaired Palate
9/20/03 Repaired Hypospadious 12/03...Crazy man!!