Amber, glad to hear it went well. But sad to hear they had to have the surgery.
Both of them on the same day?? OH man LOL. How old are they again?
My boy Skyler willbe 3 in two weeks. And i found out a week and a half ago that
we are going to have another baby in April. We are expecting Sticklers, but are
hoping that the Pierre Robin will be absent from this one :) Keep us in your
htoughts.


I did have a question tho. Skyler is still seeing poorly, tho now, he has this
fear of docs, so at our last clinic appt, no one really got a good look at him,
cause at 5ft away, he was freakin out!! poor thing. anyways, the doctor
mentioned again this occular albinsm thing, and no macular reflex...and that he
had anohter patient with Marshal-sticklers with the same thing....

so my ? to you guys, do any ofyour kids have a poor or none at all Macular
reflex, that the doc may have mentioned occular albinisim?? I am very curious
now to as is it realated to Sticklers maybe??

alright, take care,
Casie mom to Skyler 35 months, PRS SS Trach former Gtuber, resolved Glaucoma,
Hypotonia-but walking now, Repaired Palate 9/20/03 Repaired Hypospadious
12/03...Crazy man!!