I have to say that it is very unusual for sticklers effected people to be born
with a cleft lip, it
is only clefting of the palate that is associated with sticklers.

jane - in Wales


--- In sticklersyndrome@yahoogroups.com, "tarawells1029" <tarawells1029@y...>
wrote:
> My daughter was diagnosed with detached retinas in both eyes on
> Friday
> and had her right eye repaired same day. She also is profoundly deaf
> and was born with a cleft lip and congenital heart defect. She has
> not
> been diagnosed with this syndrome yet. I was just searching the web
> trying to figure out how all of her problems were related and found
> information on Sticklers and it sounded like a match. What should my
> next step be? What questions do I need to ask her doctor and which
> one
> would have the most info on this? The opthamologist,
> otolaryngologist,
> family doctor? Any help would be great.