we have absolutely no history of it in our family
either

--- lisahutchins17 <lisahutchins17@...> wrote:

> Hello my name is Lisa and I am the mother of Ross
> who has Stickler
> Syndrome. He is 3 years old now and was diagnosed at
> birth. He had a
> cleft palate, has high tone deafness and severe
> myopia. He also has
> enlarged joints so pretty much the full blown thing
> as per literature
> I have read. I have never met anyone else with
> Sticklers as yet or
> any
> other parents of a child with the condition. There
> is no one else in
> the history of our family with this genetic
> condition so we think it
> must be a throw back from somewhere or Ross is just
> unlucky and is
> now
> at the start of the chain. i would love to hear
> from anyone who has
> any advise for me or another family with a child who
> has grown up
> with
> this condition.
>
>
>
>




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