My daughter was diagnosed with detached retinas in both eyes on
Friday
and had her right eye repaired same day. She also is profoundly deaf
and was born with a cleft lip and congenital heart defect. She has
not
been diagnosed with this syndrome yet. I was just searching the web
trying to figure out how all of her problems were related and found
information on Sticklers and it sounded like a match. What should my
next step be? What questions do I need to ask her doctor and which
one
would have the most info on this? The opthamologist,
otolaryngologist,
family doctor? Any help would be great.