Hello
My name is Patti and I was diagnosed with SS in 1976 at the age of
12 when my retina detached and I went totally blind in my left eye. I
spent 5 weeks in the hospital in New Orleans to repair my retina. I
have had Laser tacking done, the removal of cataracts in both eyes at
the age of 30. I am now 41 and suffer with joint pain and scoliosis. I
inherited this syndrome form my mothers side of the family. My sisters
suffer with cleft palates, hearing loss and degenerative disc
disease,and early signs of osteoarthritis. I am now seeing signs in my
daughters.
It is amasing to me that when I told their pediatrician about this
he asked me about it and that he would have to researh it.

Patti