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Alannah's Stickler Diagnosis   Message List  
Reply | Forward Message #273 of 810 |
[Stickler Syndrome ] Re: Alannah's Stickler Diagnosis

thanks
>
>
> Amber <poetmash@y...> wrote:
>
> Hi Amber! My name is Heather Russell. I know I am getting back
to you very late after the e-mail. I & my oldest two daughters
Kayla (10),& Paige (9), also have Sticklers. I however went on to
have my third daughter Ashton Dawn. She is perfectly fine. We
didn't know until 2.5 years ago that I even had Stickler. They
thought my girls only had a cleft-palate. They always thought my
severe nearsightedness was from being born 7 weeks early. That was
wrong. I now have osteoarthritis & retinal detachments. Ashton
however is the only one of my girls that I got to bring home right
away & has been totally healthy. She had a lot of prayer. My
advice is to have a lot of faith & prayer. Go from the
>
> Heather Russell
>
>
>
>
>
>
>
> ---------------------------------
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> [Non-text portions of this message have been removed]





Tue Jun 7, 2005 5:37 am

poetmash
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Message #273 of 810 |
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Hi everyone, i have not visited here since last September as we were told Sticklers was unlikely for Alannah our little girl. Well heloo hello she has just...
leisurefun2003
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Feb 28, 2005
1:28 pm

Hi! My husband was diagnosed w/ Sticklers when I was PG w/ my 1st child when seeing a genetics doctor. Thats when we figured out lots of his family members...
Amber
poetmash
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Mar 2, 2005
6:03 am

Hi Amber Thankyou for your information. It is lovely to be in touch with others sharing in this situation. They won't do embryonic testing for this particular...
leisurefun2003
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Mar 2, 2005
7:06 am

I am an only child too. My dad recently passed away from M.S. so I am worried I might have that disease. They now say it can be herditary. ~Amber ... is ... ...
Amber
poetmash
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Mar 4, 2005
5:43 am

Hi again Amber, My Dad and my paternal grandfather (dec.) have Alzheimer's disease and that runs in family's too, so I know how you feel, because I worry about...
leisurefun2003
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Mar 4, 2005
12:31 pm

Hi Simone! I hope they find cures for all they diseases in our lifetime & soon. ~Amber ... I...
Amber
poetmash
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Mar 4, 2005
10:45 pm

Hear hear!!! I figure that in my family, it's either Stickler's, Alzheimer's, heart disease, stroke or cancer!!!! LOL Good bunch of things to choose from hey? ...
leisurefun2003
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Mar 5, 2005
9:00 am

Amber <poetmash@...> wrote: Hi Amber! My name is Heather Russell. I know I am getting back to you very late after the e-mail. I & my oldest two...
matt russell
mattnheatherr
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Jun 2, 2005
3:43 am

thanks ... to you very late after the e-mail. I & my oldest two daughters Kayla (10),& Paige (9), also have Sticklers. I however went on to have my third...
Amber
poetmash
Offline Send Email
Jun 7, 2005
5:38 am

Amber <poetmash@...> wrote: Hi Amber! My name is Heather Russell. I know I am getting back to you very late after the e-mail. I & my oldest two...
matt russell
mattnheatherr
Offline Send Email
Jun 2, 2005
3:44 am
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