Hi Joni,
I wish I could give you info on the surgery and the arthritis.My son has
sticklers and it has only affected his eyes(so far).I did want to welcome
you to the group and wish you the best with your family.Charlene

>From: "jonitrt" <crazytrout@...>
>Reply-To: sticklersyndrome@yahoogroups.com
>To: sticklersyndrome@yahoogroups.com
>Subject: [Stickler Syndrome ] New!
>Date: Tue, 15 Mar 2005 22:51:08 -0000
>
>
>Hello! I am so glad I found this group. My name is Joni and I have a
>two year old and a 6 month old. My husband, sister-in-law and mother-
>in-law have sticklers syndrome. My 6 month old also has sticklers and
>mild prs. My two year old is unaffected!
>All of the affected adults are blind in one eye due to retinal
>detachment. My husband seems to be the only one with hearing loss and
>arthritis. Evan (my little one) has been in glasses since he was 2
>months old. He has not had a trach or feeding tube. We had a rough
>beginning but are doing great now. He is breathing so good at night
>now that I still get nervous that I can not hear him breath down the
>hallway! He will have his palate surgery in two weeks. I would love
>some input on what to expect. Also, any information on adults and
>arthritis would be great also. My husband has been in a lot of pain
>lately and we can not seem to control it. He is 31 and cannot climb
>stairs or a ladder. Any info would be great!
>Joni
>
>
>