After your childs surgery there will probably be dried blood around
his mouth & you may need to request some pain meds for him if he has
discomfort. They will make arm splints for him so he cannot put his
hands in his mouth & reopen the hole. Your husband should ask his
doctor for some sort of prescription for his pain. Welcome to the
group! ~Amber
>
> Hello! I am so glad I found this group. My name is Joni and I have
a
> two year old and a 6 month old. My husband, sister-in-law and
mother-
> in-law have sticklers syndrome. My 6 month old also has sticklers
and
> mild prs. My two year old is unaffected!
> All of the affected adults are blind in one eye due to retinal
> detachment. My husband seems to be the only one with hearing loss
and
> arthritis. Evan (my little one) has been in glasses since he was 2
> months old. He has not had a trach or feeding tube. We had a rough
> beginning but are doing great now. He is breathing so good at
night
> now that I still get nervous that I can not hear him breath down
the
> hallway! He will have his palate surgery in two weeks. I would
love
> some input on what to expect. Also, any information on adults and
> arthritis would be great also. My husband has been in a lot of
pain
> lately and we can not seem to control it. He is 31 and cannot
climb
> stairs or a ladder. Any info would be great!
> Joni