Hi! My husband was diagnosed w/ Sticklers when I was PG w/ my 1st
child when seeing a genetics doctor. Thats when we figured out lots
of his family members have Sticklers. Yes there is a 50/50 chance
each child will get it. Both my kids have it. Out of my mother in
laws 3 only one of her kids (my husband) has it. One of my
husband's cousins has had 8 or 9 kids & most of her kids have it.
Whether you decide to have another child is a personal decision for
you & your husband. I have also heard of a procedure (if you can
afford it I can't) where you can have embryo selective process where
your child has no genetic problems you'd have to ask your doctor
about that. I hope some of this info has helped. ~Amber
>
> Hi everyone,
>
> i have not visited here since last September as we were told
> Sticklers was unlikely for Alannah our little girl. Well heloo
hello
> she has just been diagnosed at 10 months and has come as a bit of
a
> shock. With her diagnosis comes mine also and my mum and my
> grandmother. 4 generations of us so far, and we never knew!!
> Is this quite common???
>
> We are quite aware now of all that Sticklers involves and I had
made
> myself look things up in the early days when we weren't sure.
>
> My husband and I had made a decision to have a third child (Damon
3
> 1/4 no Sticklers, Alannah 10 months Sticklers Pierre Robin,
> mandibular distraction, moderate hearing loss, short sighted, no
> current joint problems) about 2 weeks ago and then last week they
> gave us this news......
>
> Before we go ahead and start trying for another, we would like to
> know what other people have done in our position. It is a big
> decision knowing what can happen - a 50/50 chance.... we have two
> beautiful children now, but I have always wanted three......
>
>
> Help anyone
>
> Simone Hill