Hi again Charlene,
Yes this syndrom can affect all the conecting tissues.(heart,joints,eyes}
doesnt affect everyone the same. What was the surgery your daughter had?
I know what ya mean about her hating the surgery.My son is so sick of having
them.(9 since last Aug.) I cant blame him but we have to try to save some
sight.
Well I got to run...Happy New Year to you and yours,Charlene

>From: "jimsgirll1990" <cmitchell14@...>
>Reply-To: sticklersyndrome@yahoogroups.com
>To: sticklersyndrome@yahoogroups.com
>Subject: [Stickler Syndrome ] Re: new member
>Date: Thu, 30 Dec 2004 01:38:51 -0000
>
>
>--Hello, thank you for the welcome. I guess I didn't realize that
>this syndrome, could affect your eyes. i guess my daughter had a
>mild case, just one side of her lip and the soft palate. I am
>thankful things are going so well, even though she really fought me
>on this last surgery. she just hates them. I wish your family well
>and once again thanks for the welcome, charlene- In
>sticklersyndrome@yahoogroups.com, "charlene north"
<gramafsh@h...>
>wrote:
> > Hi Charlene,
> > Iam Charlene also.My 16 yr old son has sticklers.He is most
>affected in his
> > eyes.He is going for his 9th operation in a couple weeks.(retna
> > detachments,glaucoma,catarac). He is a trooper and an honor
>student despite
> > his set backs..Hope all goes well with you and yours and welcome
>to the
> > group..Charlene
> >
> > >From: "jimsgirll1990" cmitchell14@n...
> > >Reply-To: sticklersyndrome@yahoogroups.com
> > >To: sticklersyndrome@yahoogroups.com
> > >Subject: [Stickler Syndrome ] new member
> > >Date: Mon, 27 Dec 2004 16:14:01 -0000
> > >
> > >
> > >Hello My name Is Charlene. I am married and have 3 kids.
My
>oldest
> > >who is now 15, Danielle), was born with a cleft palate and
>lip. She
> > >is doing well now. I thought I would join this group as a
>source of
> > >support for myself and hopefully I can help support others
>also.
> > >Hope to chat with you all soon, Charlene
> > >
> > >
> > >
>
>
>