--Hello, thank you for the welcome. I guess I didn't realize that
this syndrome, could affect your eyes. i guess my daughter had a
mild case, just one side of her lip and the soft palate. I am
thankful things are going so well, even though she really fought me
on this last surgery. she just hates them. I wish your family well
and once again thanks for the welcome, charlene- In
sticklersyndrome@yahoogroups.com, "charlene north" <gramafsh@h...>
wrote:
> Hi Charlene,
> Iam Charlene also.My 16 yr old son has sticklers.He is most
affected in his
> eyes.He is going for his 9th operation in a couple weeks.(retna
> detachments,glaucoma,catarac). He is a trooper and an honor
student despite
> his set backs..Hope all goes well with you and yours and welcome
to the
> group..Charlene
>
> >From: "jimsgirll1990" cmitchell14@n...
> >Reply-To:
sticklersyndrome@yahoogroups.com
> >To:
sticklersyndrome@yahoogroups.com
> >Subject: [Stickler Syndrome ] new member
> >Date: Mon, 27 Dec 2004 16:14:01 -0000
> >
> >
> >Hello My name Is Charlene. I am married and have 3 kids. My
oldest
> >who is now 15, Danielle), was born with a cleft palate and
lip. She
> >is doing well now. I thought I would join this group as a
source of
> >support for myself and hopefully I can help support others
also.
> >Hope to chat with you all soon, Charlene
> >
> >
> >