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Reply | Forward Message #204 of 810 |
RE: [Stickler Syndrome ] new member

Hi Charlene,
Iam Charlene also.My 16 yr old son has sticklers.He is most affected in his
eyes.He is going for his 9th operation in a couple weeks.(retna
detachments,glaucoma,catarac). He is a trooper and an honor student despite
his set backs..Hope all goes well with you and yours and welcome to the
group..Charlene

>From: "jimsgirll1990" <cmitchell14@...>
>Reply-To: sticklersyndrome@yahoogroups.com
>To: sticklersyndrome@yahoogroups.com
>Subject: [Stickler Syndrome ] new member
>Date: Mon, 27 Dec 2004 16:14:01 -0000
>
>
>Hello My name Is Charlene. I am married and have 3 kids. My oldest
>who is now 15, Danielle), was born with a cleft palate and lip. She
>is doing well now. I thought I would join this group as a source of
>support for myself and hopefully I can help support others also.
>Hope to chat with you all soon, Charlene
>
>
>





Wed Dec 29, 2004 7:57 pm

gramafsh
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Message #204 of 810 |
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Hi my name is valerie and i as well as most of my family has sticklers but didnt know that there was a name for it till my daughter and son were diagnosed. I...
valerie
valeriejarrett
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Jul 21, 2004
1:12 am

--Hi Valerie, Iam mom to a son with sticklers..I didnt know anything about it either til I went surfing the net and found all kinds of info..Even had to print...
gramafsh
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Jul 21, 2004
8:49 pm

i would love to talk some more, i also had to explain to some dr. what it is and what are some symptoms. if you have any good web sites i would be greatful . ...
VALERIE JARRETT
valeriejarrett
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Jul 22, 2004
5:56 pm

Hello My name Is Charlene. I am married and have 3 kids. My oldest who is now 15, Danielle), was born with a cleft palate and lip. She is doing well now. I...
jimsgirll1990
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Dec 27, 2004
4:14 pm

Hi Charlene, Iam Charlene also.My 16 yr old son has sticklers.He is most affected in his eyes.He is going for his 9th operation in a couple weeks.(retna ...
charlene north
gramafsh
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Dec 29, 2004
7:59 pm

--Hello, thank you for the welcome. I guess I didn't realize that this syndrome, could affect your eyes. i guess my daughter had a mild case, just one side of...
jimsgirll1990
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Dec 30, 2004
1:38 am

Hi again Charlene, Yes this syndrom can affect all the conecting tissues.(heart,joints,eyes} doesnt affect everyone the same. What was the surgery your...
charlene north
gramafsh
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Dec 30, 2004
8:47 pm
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