Welcome Charlene.. I am Shauna.. I am 28 yrs old and I have Sticklers. I was
born with no nose bridge and so therefore i have the "flat face" (trust me kids
picked up on that lol). I just recently had my third back surgery. It was
almost 14 weeks ago. I had to have a spinal fusion, and my spinal canal
widened. I have a biuvula too, which I hear is pretty common in Sticklers. It
freaks my friends out, its pretty cool LOL. Lets see, My kneecaps are square
rather than round and I have no cartildge in my knees. I have arthritis in
every part of my body mostly. My doctor says thats part of Sticklers too. My
mom and I were the first diagnosed with it in the state of Michigan back when i
was a kid. My mom doesnt have alot of the symptoms. And we cant trace it back
to anyone else in the family.

Wow, sorry i wrote alot LOL.. I am in a rambling mood I guess this morning lol

Welcome again!

Shauna
Michigan

----- Original Message -----
From: jimsgirll1990
To: sticklersyndrome@yahoogroups.com
Sent: Monday, December 27, 2004 11:14 AM
Subject: [Stickler Syndrome ] new member



Hello My name Is Charlene. I am married and have 3 kids. My oldest
who is now 15, Danielle), was born with a cleft palate and lip. She
is doing well now. I thought I would join this group as a source of
support for myself and hopefully I can help support others also.
Hope to chat with you all soon, Charlene




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