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sticklersyndrome · Stickler Syndrome - Stickler Syndrome stories and support

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Message #202 of 810 |

new member

Hello My name Is Charlene. I am married and have 3 kids. My oldest
who is now 15, Danielle), was born with a cleft palate and lip. She
is doing well now. I thought I would join this group as a source of
support for myself and hopefully I can help support others also.
Hope to chat with you all soon, Charlene

Mon Dec 27, 2004 4:14 pm

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"jimsgirll1990" <cmitchell14@...>

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Message #202 of 810 |

Expand Messages	Author	Sort by Date
Hi my name is valerie and i as well as most of my family has sticklers but didnt know that there was a name for it till my daughter and son were diagnosed. I...	valerie valeriejarrett	Jul 21, 2004 1:12 am
--Hi Valerie, Iam mom to a son with sticklers..I didnt know anything about it either til I went surfing the net and found all kinds of info..Even had to print...	gramafsh	Jul 21, 2004 8:49 pm
i would love to talk some more, i also had to explain to some dr. what it is and what are some symptoms. if you have any good web sites i would be greatful . ...	VALERIE JARRETT valeriejarrett	Jul 22, 2004 5:56 pm
Hello My name Is Charlene. I am married and have 3 kids. My oldest who is now 15, Danielle), was born with a cleft palate and lip. She is doing well now. I...	jimsgirll1990	Dec 27, 2004 4:14 pm
Hi Charlene, Iam Charlene also.My 16 yr old son has sticklers.He is most affected in his eyes.He is going for his 9th operation in a couple weeks.(retna ...	charlene north gramafsh	Dec 29, 2004 7:59 pm
--Hello, thank you for the welcome. I guess I didn't realize that this syndrome, could affect your eyes. i guess my daughter had a mild case, just one side of...	jimsgirll1990	Dec 30, 2004 1:38 am
Hi again Charlene, Yes this syndrom can affect all the conecting tissues.(heart,joints,eyes} doesnt affect everyone the same. What was the surgery your...	charlene north gramafsh	Dec 30, 2004 8:47 pm

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