Hi Barb, I am a member of SSSG but unfortunatly not a very active one. I will
check out the gene site. Take care Em



sheapc <no_reply@yahoogroups.com> wrote: Hi Emma, different type of collagen in
the skin, so no link to
Sticklers. The body has 12 different types of collagen in it and
Sticklers affects only Type 2. One important thing to remember is
that just because you have one thing it doesn't mean that it the
cause of other things, or that you can't have something else as
well.

Geneclinics has a great review of Stickler syndrome. (geneclinics.org)
Are you a member of SSSG?

Barb in Montreal

--- In sticklersyndrome@yahoogroups.com, "emmatwyman"
<emmatwyman@y...> wrote:
> Hi My name is Em and I come from Kent, England, and I am 32. I was
> diagnosed as a Sticky person about 25 years ago. Have had detached
> retina and lost sight in my right eye, and have had lense removed
in
> left eye. My legs don't work so well (you know that wobbly feeling
> you get and you brain just won't talk your legs) so have to use a
> wheelchair sometimes.
>
> I would like to know if anyone else has found that there hair is
> getting thin with age? Mine is and I have tried to think it
through
> logically, break down of collegen is why we have our problems,
> collegen breaks down, collegen makes skin elastic, which would make
> skin less strong, which would possibly make hair fall out quicker
> than normal. Would anyone agree or have any experience they can
> share.
>
> Its great to find a place where people know what its like to have
> sticklers, thanks to everyone.
>
> Em


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