--- In sticklersyndrome@yahoogroups.com, jamie COX
<llegallyblonde29@y...> wrote:
> i have a cleft palate along with middle/inner ear problems i havent
lost hearing yet except for very high tones, i also am nearsighted
but not severely i found a paper from when i was 5 saying i could
have probable PRS/i have PRS and that i could have stickler's and i
need to be tested ever year but my mom never takes me, the paper was
the first i had heard of it and i can not find any other documents so
i dont no if i have sticklers or not i went online and researched it
and my knees and ankles have been bothering me alot lately plus i
also fit some of ther other symptoms but its not like im dying and
some of the stickler's pages dont fit me at all and others fit me
exactly i dont want to confront my mom but how likely is it that i
have stickler's?
>
>
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hi, it sounds like u do have sticklers syndrome, both of my daughters
have it, one was born with a cleft palate, with pierre rabin
syndrome, my other daughter has sticklers only. Sticklers syndrome is
a connective tissue disorder, affecting joints, hearing and eyesight.
the pain in your knees and ankles could be osteo-arthritis, you
should probably get in to see a dr for a diagnosis. your eyesight and
hearing can definitely be affected also, one of my daughters retina's
just detatched ( she's 19 ) and she's probably lost most of the
vision in that eye even tho she had surgery to reattach it. she also
was born with congenital cataracts. my other daughter has some
hearing loss, she's 17. I would definitely recommend going to the dr
and telling them that u were diagnosed with sticklers syndrome, and
have yourself thoroughly checked out. good luck!