I e-mailed you & I added my family's pic to the photo section.~Amber
> Welcome Amber, My name is Casie I have an almost 20 month old
little boy named skyler. He too has Sticklers along with another
condition called Pierre Robin Sequence. (basically a small chin/jaw)
He got the Sticklers from me, and at 21 I found out I had it (thats
when he was born) How old are your little ones? Are they only
affected by sticklers? It would be good to get to know you and your
family, you can private email me if you would like. Talk to you
later ~Casie mom to skyler 20months in 2 days PRS SS trach gtube
repaired palate repaired hypospadious hypotonia reflux glaucoma cute
as a bug!!
> ----- Original Message -----
> From: Amber
> To: sticklersyndrome@yahoogroups.com
> Sent: Sunday, April 18, 2004 7:52 PM
> Subject: [Stickler Syndrome ] New member here
>
>
> Hi! I am a mom of 2 children w/ Stickler's they inherited it
from
> their father. Thanks for letting me join.
>
>
>
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