Welcome Amber, My name is Casie I have an almost 20 month old little boy named
skyler. He too has Sticklers along with another condition called Pierre Robin
Sequence. (basically a small chin/jaw) He got the Sticklers from me, and at 21 I
found out I had it (thats when he was born) How old are your little ones? Are
they only affected by sticklers? It would be good to get to know you and your
family, you can private email me if you would like. Talk to you later ~Casie mom
to skyler 20months in 2 days PRS SS trach gtube repaired palate repaired
hypospadious hypotonia reflux glaucoma cute as a bug!!
----- Original Message -----
From: Amber
To: sticklersyndrome@yahoogroups.com
Sent: Sunday, April 18, 2004 7:52 PM
Subject: [Stickler Syndrome ] New member here


Hi! I am a mom of 2 children w/ Stickler's they inherited it from
their father. Thanks for letting me join.



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