Another good link to check out is: http://www.secretservice.gov/alert419.shtml

Shelly Moore
President - Oregon Chapter National Marfan Foundation
(Self & all 3 kids Stickler's Syndrome affected, husband Marfan Syndrome
affected)

Have-A-Heart for Marfan's!
Learn More about Marfan's Syndrome at http://www.marfan.org
Also visit the Oregon web site at http://oregonchapternmf.homestead.com

Stick together to help those with Stickler's Syndrome!
Visit the Stickler Involved People's site at http://www.sticklers.org/sip/
Reaching out to those with Stickler's in Oregon at
http://oregonsticklers.homestead.com

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