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worried sick.   Message List  
Reply | Forward Message #110 of 810 |
Re: [Stickler Syndrome ] worried sick.

hi,

Being a person who was born with a cleft palate of the hard and soft. I can tell
that the hole that is still in your daughters mouth after the repair does not
seem right. And if the tooth pokes out when it shouldn't doesn't really seem
like the jaw is aligned right unless the tooth is growing crooked. Either way I
would seek a second opinion just to make sure that everything is okay and that
the right decision is being made.

citygrlx3 <julielemmings@...> wrote:
my daughter sarah is 13 months old. she recently had her palet
repaired, she had a cleft of the hard and soft palet. when her dr.
did the surgery he just pulled the tissue together and sewed it shut.
well three weeks later she has a hole the size of a small almond in
her palet. he says not to worry, I say something is not right. we are
trying to get her trach out and the doc says that her jaw is in
alignment, but her one tooth that she has actually sits over her
bottom lip when her mouth is closed. i don't know if i should call
another docor continue to see this one. any suggestions or info will
help. thanks, mom to sarah, prs,trach,palet problems etc..



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Sat Jan 3, 2004 8:13 am

sunshine_gir...
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Message #110 of 810 |
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my daughter sarah is 13 months old. she recently had her palet repaired, she had a cleft of the hard and soft palet. when her dr. did the surgery he just...
citygrlx3
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Dec 23, 2003
5:05 am

hi, Being a person who was born with a cleft palate of the hard and soft. I can tell that the hole that is still in your daughters mouth after the repair does...
kristin
sunshine_gir...
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Jan 3, 2004
8:13 am
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