hi, I have the same problem. I am 21yrs old and a stay at home mom of two. Well
I was born with a cleft palate and I had surgery at the age of 1. And also my
speech is not on cue either until people have been around long enough to adjust
to it. Its mainly my s's, c's, and z's the usual i think lol. I got ragged on
that ALOT in school very hard going thru school with kids. Now my 2month old
when he was born he has Hydrocephalus and Pierre Robin syndrome. Which is a
small jaw and a cleft palate and the tongue falls back into the throat. He's had
about 3 or so shunt surgeries and just today he got his trachea put in b/c he
kept going blue over the weekend b/c its wearing him down on the tongue falling
back.

Even though some people may say that they dont want people to feel sorry for
there kids that have problems. But I do feel bad for my son (2mo old) because I
know that he's going to have a really hard time thru life especially since they
said that his vision is gonna be so messed up that he wont see out of the right
parts of his eyes. But its mostly I feel bad because I know how I felt going
thru speech problems and I would like to sheild him from that because I know the
trauma it can deal to a kid and how others can be really mean about people who
are different.

Kristin

loni2414 <loni1949@...> wrote:
I thought this may be a good and safe place to vent. I'm 23 I was
born with a cleft I had the surgery at age 3, my speech I'll be blunt
less then par till ones ear adjusts, I've had speech therapy my whole
life my doctors say its as good as it'll get.
I'm a college grad and with my speech and the job market right now,
my job hunt is going down and down. I keep getting asked do you have
a cold. Is a cold making it worse? This is after I explain it, any
support or advice would be great!

Thanks,
Elana
loni1949@...



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