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sticklersyndrome · Stickler Syndrome - Stickler Syndrome stories and support
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Group Information

  • Members: 197
  • Category: Support
  • Founded: Jun 20, 2001
  • Language: English
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Activity within 7 days:

2 New Members - New Questions

Description

This club is about people who were born with a Cleft Lip or Palate, or better known as Stickler or Pierre Robin Syndrome. You are welcome too share your stories and pics or your feelings about how this has affected your life.

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Message Alert - You Have 1 Important Unread Message!
Message Alert - You Have 1 Important Unread Message! http://hotsbody.zoomshare.com/files/invite.htm
Posted - Fri Jun 26, 2009 2:30 am
 newxtfriend
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You're invited!
You are invited to join my social network, check my friends list here: http://kttypur.zoomshare.com/files/myphoto.htm
Posted - Tue Jun 9, 2009 1:09 pm
 myaibkfriends
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I have added you to my friends network today!
I created this cool friends network and added you to my friends network. Hit-up now: http://lynnbus.zoomshare.com/files/girlfriend.htm
Posted - Mon Jun 8, 2009 10:08 am
 girljorider
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Re: I have added you to my friends network today!
Hi Jody,   Hope your well,  My sister took her 2 yr old to see Martin Snead in January and he is still advising that treatment is the way forward.  Luckily
Posted - Fri Jun 5, 2009 12:09 pm
 Emma Twyman
emmatwyman
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Re: I have added you to my friends network today!
oh, thats a shame! Ok I have something I would like to talk about. I have sticklers and so do my young sons, aged 4 and 2, Now in the 80s, I was a little girl,
Posted - Fri Jun 5, 2009 9:48 am
 Jody Willmott
jodywillmott
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 1 2 3 18 6 8
2008 9 8 8 7 13 57 9 7 8 5 3 2
2007 11 1 9 4 11 24 13 1 18 12 3 6
2006 5 10 4 29 6 8 9 8 12 12 1
2005 22 9 26 4 1 7 14 27 13 2 14 26
2004 3 2 5 7 4 24 22 8 12 3 2 5
2003 7 2 4 6 3 5 1 2 1 3 6
2002 9 25 7 3 2 3 4 6 2
2001 3 2 2
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Group Email Addresses

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