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New to the group with lots of questions   Message List  
Reply | Forward Message #484 of 1465 |
RE: [stemcellsafety] Re: New to the group with lots of questions

Oh, that’s okay.  He’s almost 3.  He was without oxygen for about 20 minutes at birth (his cord was in a knot, my uterus ruptured, and the doctor had gone out to dinner).  Full term, 10 pounds.  Much calamity and chaos in the delivery room.  He wasn’t expected to survive 5 minutes, but here we are, 3 years later.  His body is healthy and strong – he’s not even on any medication.  But he’s profoundly brain injured, can’t swallow or blink, and has never smiled.  Maybe he’s saving that for when we get some sense and get stem cell therapy approved in this country!

 

He is coming around, slowly but surely.  We know he’s in there, and are just praying hard that we’ll find the key  to get him out!

Thanks,
Allison
www.wakeupsam.com

 

From: stemcellsafety@yahoogroups.com [mailto:stemcellsafety@yahoogroups.com] On Behalf Of EdandRita Staudt
Sent: Saturday, June 02, 2007 10:21 AM
To: stemcellsafety@yahoogroups.com
Subject: RE: [stemcellsafety] Re: New to the group with lots of questions

 

Sorry, I didn't know.  How old is your child?  What type of brain injury did your child sustain, if I am not too bold to ask.

Tim and Allison Anderson <tcaj.anderson@verizon.net> wrote:

Good information, but that drug is for a genetic disorder, not brain injury.  The search continues. 

Thanks,
Allison
www.wakeupsam.com

From: stemcellsafety@yahoogroups.com [mailto:stemcellsafety@yahoogroups.com] On Behalf Of EdandRita Staudt
Sent: Saturday, June 02, 2007 8:42 AM
To: stemcellsafety@yahoogroups.com
Subject: RE: [stemcellsafety] Re: New to the group with lots of questions

Not a clue, but I am attaching an article I would like you to read and discuss with your doctor.  There may be alternatives to stem cell therapy until it becomes available in the US.It is not an alternative for me but it sounds promising for the type of condition your child has. Again I am not a doctor just a patient doing all the research I can.


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Sat Jun 2, 2007 2:29 pm

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ajjudge1
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Forward 		Message #484 of 1465 |
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I have a 6 year old daughter who I am seriously considering stem cell therapy. Over the years I have tried numerous alternative therapies, the most successful... 		Sharon Fitzgerald
erinbear3101
Offline Send Email 		May 24, 2007
3:21 pm

I have done some research and talked to the Research Dept at Rockefeller Institute. It seems that clinics outside of the US do not have the same standards at...
ed_rita_staudt
Offline Send Email 		Jun 1, 2007
3:50 pm

I have had similar concerns. I know there are matching techniques available, similar to Blood Group matching. However, there seem to be no regulations ...
Muneesh Chawla
muneesh.chawla
Offline Send Email 		Jun 2, 2007
4:22 am

Read the attached article from the Times. If you think you can plow through the original published paper on this, I will be happy to send it to you. I got...
EdandRita Staudt
ed_rita_staudt
Offline Send Email 		Jun 2, 2007
12:49 pm

It sounds as if this patient received fetal cells, as opposed to the umbilical cells that I think almost all of the children on this group have received. Do...
Tim and Allison Ander...
ajjudge1
Offline Send Email 		Jun 2, 2007
4:30 am

Not a clue, but I am attaching an article I would like you to read and discuss with your doctor. There may be alternatives to stem cell therapy until it...
EdandRita Staudt
ed_rita_staudt
Offline Send Email 		Jun 2, 2007
12:44 pm

Great – thanks for passing it on. Once upon a time I thought we could rely on our doctors to do that kind of research for us but,…..I’m grateful we have...
Tim and Allison Ander...
ajjudge1
Offline Send Email 		Jun 2, 2007
12:49 pm

Good information, but that drug is for a genetic disorder, not brain injury. The search continues. Thanks, Allison HYPERLINK...
Tim and Allison Ander...
ajjudge1
Offline Send Email 		Jun 2, 2007
12:54 pm

Sorry, I didn't know. How old is your child? What type of brain injury did your child sustain, if I am not too bold to ask. Tim and Allison Anderson...
EdandRita Staudt
ed_rita_staudt
Offline Send Email 		Jun 2, 2007
2:21 pm

Oh, that’s okay. He’s almost 3. He was without oxygen for about 20 minutes at birth (his cord was in a knot, my uterus ruptured, and the doctor had gone...
Tim and Allison Ander...
ajjudge1
Offline Send Email 		Jun 2, 2007
2:30 pm

Also, this would not help for diabetes or it's many side effects. ... "mailto:stemcellsafety%40yahoogroups.com"stemcellsafety@-yahoogroups.-com, ... ...
Patricia Rathje
patricia_rathje
Offline Send Email 		Jun 2, 2007
5:40 pm

WOW, If you don't mind sharing.........had you had a previous cesarean section? Did you have an emergency c section? As a labor and delivery nurse I am...
dykesjcs@...
christidykes
Offline Send Email 		Jun 3, 2007
2:37 pm

Hi Christi, No, I hadn’t had a c-section before (I wouldn’t have taken that risk) and I had a previous normal healthy delivery. Everything was supposed to...
Tim and Allison Ander...
ajjudge1
Offline Send Email 		Jun 3, 2007
6:18 pm

It is very interesting to hear it from the patients point of view. It is so different being on the other side. Everyone involved in the care has such a...
dykesjcs@...
christidykes
Offline Send Email 		Jun 3, 2007
9:24 pm

Well, I guess it surprises me that although he didn’t HAVE to check in with us, I’m surprised he didn’t check in to see how I was doing before he left ...
Tim and Allison Ander...
ajjudge1
Offline Send Email 		Jun 3, 2007
10:26 pm

Thanks Christi!! Taylor has made such a hughe impact on so many!!! Hey in 4 months maybe you can be there to share the joy of #2 coming into the world!!...
Stephanie Rumph
stephrumph
Offline Send Email 		Jun 3, 2007
10:29 pm

Everyone is so excited about baby #2. They all ask about you often. No we are not going to let this one come into the world the same way Taylor did. Taylor...
dykesjcs@...
christidykes
Offline Send Email 		Jun 4, 2007
4:21 am

Yeh, hind sight is 20/20. Like I said, you would not believe, we don't have a doctor in the building at all most of the time. We call the doctor when we are...
dykesjcs@...
christidykes
Offline Send Email 		Jun 4, 2007
4:16 am
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