Not a clue, but I am attaching an article I would like you to read and discuss with your doctor.  There may be alternatives to stem cell therapy until it becomes available in the US.It is not an alternative for me but it sounds promising for the type of condition your child has. Again I am not a doctor just a patient doing all the research I can.

Tim and Allison Anderson <tcaj.anderson@verizon.net> wrote:

It sounds as if this patient received fetal cells, as opposed to the umbilical cells that I think almost all of the children on this group have received.   Do you know what type of cells he received? 

Thanks,
Allison
www.wakeupsam.com

---

From: stemcellsafety@yahoogroups.com [mailto:stemcellsafety@yahoogroups.com] On Behalf Of ed_rita_staudt
Sent: Friday, June 01, 2007 11:48 AM
To: stemcellsafety@yahoogroups.com
Subject: [stemcellsafety] Re: New to the group with lots of questions

I have done some research and talked to the Research Dept at Rockefeller
Institute. It seems that clinics outside of the US do not have the same
standards at the US hospitals and there are no guarantees as to where
the stem cells came from.

They referenced a patient who had a disease that would progress over a
term of around 20 years. He had the stem cell therapy outside the US
and initially saw some remission. However several months later returned
to the US doctor with fast growing lesions on the brain that were
inoperable and he died shortly thereafter. That was enough for me.

I truely think once we get Bush out of office, stem cell research and
therapy will advance in the US quickly. I am counting on it!

I understand that they have found that stem cells from the fluid
surrounding the fetus have the same properties as stem cells that come
directly from the fetus and can safely be extracted during pregnancy.

Stem cells can be rejected and the closer the match to the child, the
better. Are you thinking of having another child?

I am certain you will want to do more research. I am just a patient
struggeling with an incurable nuerological disease. Good Luck!

--- In stemcellsafety@yahoogroups.com, "Sharon Fitzgerald"
<sfitzgerald@...> wrote:
>
> I have a 6 year old daughter who I am seriously considering stem
> cell therapy. Over the years I have tried numerous alternative
> therapies, the most successful being HBOT. I am at the first stages
> of research on the umbilical stem cells and have a bunch of
> questions. If someone has time to answer I would greatly appreciate
> it. However, if this is the wrong forum please feel free to
> redirect/correct me. Thank you in advance for your help.
>
> Is there any place in the U.S. that will do this for a child with
> Cerebral Palsy?
>
> What are the risks associated with the stem cells?
>
> Has anyone's child experienced negative side effects?
>
> Can a child lose function due to the stem cells?
>
> Has any child gone from being nonverbal to gaining speech?
>
> I came across The Institute of Cellular Medicine and Dr. Ramirez
> (thanks to a member) in Mexico and then the place in China. Are
> these the only places that are offering this therapy? Is one better
> than the other?
>
> From your experiences do most children see some type of gain?
>
> I am looking for anyone's personal experience with their child to
> help me in this decision making process.
>
> Sharon
>

 

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