I am glad you found a group. They really help. Especially if there are
others in the group with a spouse that has AD. Our group was
caregivers and spouses with AD. I too live in southern CA.

Roseanne


--- In spouseswithalzheimers@yahoogroups.com, Joan Ochs
<jochs7870@...> wrote:
>
> Thank you for your email.
>
>   I have found a support group that meets every other week.  It's
part of the So. CA. Caregivers group.  Unfortunately, I have to tell
my husband I've joined a women's senior group.  I've only gone to one
meeting but felt much better after.  I've been called up for stint on
a Federal jury next week.  I hope I don't get called as I'd like to
continue with the semiweekly meetings.  I may asked to be excused
because of my husband's situation
>
>   Thank you for your support.
>
> anniez55 <no_reply@yahoogroups.com> wrote:
>           Hi Joan I am so sorry about your husband's diagnosis. You
have the
> right doctors for him. A support group will do wonders for you. There
> are some that your husband can attend too.
>
> Roseanne
>
> --- In spouseswithalzheimers@yahoogroups.com, Joan Ochs
> <jochs7870@> wrote:
> >
> > My husband was diagnosed in January. He was very upset when I told
> our son and daughter. He was also upset when I told his brother.
> >
> > He's in complete denial even though he read the report from the
> Neuropsychologist and we have an appt. with a psychiatrist this week
> for him to go over the report and prescribe medication. He's also
> seen a neurologist.
> >
> > He's always been a very private person. He's also never been a
> joiner. We have a couple of close friends, but, unfortunately, they
> live in another state.
> >
> > I'm planning to contact some caregiver organizations and go to
> their meetings.
> >
> > I feel like I need to sit him down and tell him exactly that he's
> got Alzheimers. We did go to one meeting at the Alzheimers Assoc. on
> coping with the disease and he's still in denial.
> >
> > Our daughter lives in Austin, TX with her husband and 2 small
> children. Out son lives approximately 30 miles from us but is very
> busy with his job and his wife's daughter and her grandchildren.
> >
> > I'm very scared.
> >
> > Joan
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

Thank you for your email.

   I have found a support group that meets every other week.  It's part of the
So. CA. Caregivers group.  Unfortunately, I have to tell my husband I've joined
a women's senior group.  I've only gone to one meeting but felt much better
after.  I've been called up for stint on a Federal jury next week.  I hope I
don't get called as I'd like to continue with the semiweekly meetings.  I may
asked to be excused because of my husband's situation

   Thank you for your support.

anniez55 <no_reply@yahoogroups.com> wrote:
           Hi Joan I am so sorry about your husband's diagnosis. You have the
right doctors for him. A support group will do wonders for you. There
are some that your husband can attend too.

Roseanne

--- In spouseswithalzheimers@yahoogroups.com, Joan Ochs
<jochs7870@...> wrote:
>
> My husband was diagnosed in January. He was very upset when I told
our son and daughter. He was also upset when I told his brother.
>
> He's in complete denial even though he read the report from the
Neuropsychologist and we have an appt. with a psychiatrist this week
for him to go over the report and prescribe medication. He's also
seen a neurologist.
>
> He's always been a very private person. He's also never been a
joiner. We have a couple of close friends, but, unfortunately, they
live in another state.
>
> I'm planning to contact some caregiver organizations and go to
their meetings.
>
> I feel like I need to sit him down and tell him exactly that he's
got Alzheimers. We did go to one meeting at the Alzheimers Assoc. on
coping with the disease and he's still in denial.
>
> Our daughter lives in Austin, TX with her husband and 2 small
children. Out son lives approximately 30 miles from us but is very
busy with his job and his wife's daughter and her grandchildren.
>
> I'm very scared.
>
> Joan
>
>
> [Non-text portions of this message have been removed]
>






[Non-text portions of this message have been removed]

Hi Joan I am so sorry about your husband's diagnosis. You have the
right doctors for him. A support group will do wonders for you. There
are some that your husband can attend too.

Roseanne

--- In spouseswithalzheimers@yahoogroups.com, Joan Ochs
<jochs7870@...> wrote:
>
> My husband was diagnosed in January.  He was very upset when I told
our son and daughter.  He was also upset when I told his brother.
>
>   He's in complete denial  even though he read the report from the
Neuropsychologist and we have an appt. with a psychiatrist this week
for him to go over the report and prescribe medication.  He's also
seen a neurologist.
>
>   He's always been a very private person.  He's also never been a
joiner.  We have a couple of close friends, but, unfortunately, they
live in another state.
>
>   I'm planning to contact some caregiver organizations and go to
their meetings.
>
>   I feel like I need to sit him down and tell him exactly that he's
got Alzheimers.  We did go to one meeting at the Alzheimers Assoc. on
coping with the disease and he's still in denial.
>
>   Our daughter lives in Austin, TX with her husband and 2 small
children.  Out son lives approximately 30 miles from us but is very
busy with his job and his wife's daughter and her grandchildren.
>
>   I'm very scared.
>
>   Joan
>
>
> [Non-text portions of this message have been removed]
>

My husband was diagnosed in January.  He was very upset when I told our son and
daughter.  He was also upset when I told his brother.

   He's in complete denial  even though he read the report from the
Neuropsychologist and we have an appt. with a psychiatrist this week for him to
go over the report and prescribe medication.  He's also seen a neurologist.

   He's always been a very private person.  He's also never been a joiner.  We
have a couple of close friends, but, unfortunately, they live in another state.

   I'm planning to contact some caregiver organizations and go to their meetings.

   I feel like I need to sit him down and tell him exactly that he's got
Alzheimers.  We did go to one meeting at the Alzheimers Assoc. on coping with
the disease and he's still in denial.

   Our daughter lives in Austin, TX with her husband and 2 small children.  Out
son lives approximately 30 miles from us but is very busy with his job and his
wife's daughter and her grandchildren.

   I'm very scared.

   Joan


[Non-text portions of this message have been removed]

Hello. I sent Ed a message to see how he and his wife are doing? You
are welcome to join the group I started it's called my mother has
Alzheimers. We are caregivers of AD family members. I know it is
different for you as spouses but I know you will receive support.

Roseanne

Hey Patrick,

   Thank you for responding so quickly to my message.  I couldn't help but notice
that you last message was dated August of 2005.  Is that date correct?  Where
have you been for two years?  Do you have any idea why this message board was
deserted for two years?  I really suppose that if people get interested again it
really doesn't matter why it stopped before.

               This journey has had the same effect on me as it has on you.  I am
very alone and very lonely.  Seeking out these online sites is one way I am
trying to battle the loneliness.  I am also considering trying to get involved
in the religious community.  However, my unhappiness with the way the clergy
abuse problem has been handled by all churches has made me angry with all
denominations.  I don't know how I'm going to deal with that.

               I also agree with you that we need contemporaries to commiserate
with.  People a generation older or a generation younger just don't fill the
bill.  At the Alzheimer's support group meetings most of the individuals are
children of parents with Alzheimer's.  Well, we have each other, Patrick.  I
will keep in touch.

   Bill

Patrick Gorman <patrickgor@...> wrote:
My wife who is in Alzheimers stage 6 has been living at an assisted
living facility for 5 months and seems quite happy lately in her new home.
She cried often living at home most likely because there was just the two of
us and she was expecting me to be her entertainment director all the time.
I prefer to read, surf the internet, watch the History Channel, and
work out at the gym. We are both 66 and retired to CA from NJ about 6 years
ago before the disease began. It began to take hold soon thereafter
before either of us had a chance to develop new friends. So my wife is doing
ok, at least in her own mind as she has found many "friends" at her residence.

I'm ok during the day doing some volunteer work and going to the gym but that
long period from 5 PM til 9 AM, a span of 16 hours, is taking its toll on me
as I am all by myself then with no one to talk with all that time. And eating
out
alone is no fun. I've never been on any meds but recently my doctor prescribed
high
blood pressure meds. The stress seems worse now that I'm alone. I think
it's because I realize I could be isolated for quite a long time. I can't seem
to find
any lone guys my age to "hang out with". They are all married or attached to
a significant other and hang out with other couples. An old friend living back
East
lost his wife a year ago and after grieving a few months began dating again
and said he never thought he would ever be this happy again. He says he
feels badly for me because I may not be able to achieve true happiness again
for many years because we are quite young yet. We don't communicate any more
because his conversation revolves totally around his lady friends.

Caregivers groups I've found seem to have no one in my situation. The attendees
are mostly young women who have parents with Alzheimers or old women whose
husbands have the disease. There are a couple of men but they are 15 to 20
years older than me and are content to just be home and rest all day.

I've thought of moving back East again but I no longer have relatives there and
old friends have retired and moved to the SouthEast.

Perhaps I'll find some help here.


[Non-text portions of this message have been removed]



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---------------------------------
Boardwalk for $500? In 2007? Ha!
Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

[Non-text portions of this message have been removed]

Hey Patrick,

         Thank you for responding so quickly to my message.  I
couldn't help but notice that you last message was dated August of
2005.  Is that date correct?  Where have you been for two years?  Do
you have any idea why this message board was deserted for two years?
I really suppose that if people get interested again it really
doesn't matter why it stopped before.

	 This journey has had the same effect on me as it has on you.
I am very alone and very lonely.  Seeking out these online sites is
one way I am trying to battle the loneliness.  I am also considering
trying to get involved in the religious community.  However, my
unhappiness with the way the clergy abuse problem has been handled by
all churches has made me angry with all denominations.  I don't know
how I'm going to deal with that.

	 I also agree with you that we need contemporaries to
commiserate with.  People a generation older or a generation younger
just don't fill the bill.  At the Alzheimer's support group meetings
most of the individuals are children of parents with Alzheimer's.
Well, we have each other, Patrick.  I will keep in touch.

Bill


--- In spouseswithalzheimers@yahoogroups.com, Patrick Gorman
<patrickgor@...> wrote:
>
>
> My wife who is in Alzheimers stage 6 has been living at an assisted
> living facility for 5 months and seems quite happy lately in her
new home.
> She cried often living at home most likely because there was just
the two of
> us and she was expecting me to be her entertainment director all
the time.
> I prefer to read, surf the internet, watch the History Channel, and
> work out at the gym. We are both 66 and retired to CA from NJ about
6 years
> ago before the disease began. It began to take hold soon thereafter
> before either of us had a chance to develop new friends. So my wife
is doing
> ok, at least in her own mind as she has found many "friends" at her
residence.
>
> I'm ok during the day doing some volunteer work and going to the
gym but that
> long period from 5 PM til 9 AM, a span of 16 hours, is taking its
toll on me
> as I am all by myself then with no one to talk with all that time.
And eating out
> alone is no fun. I've never been on any meds but recently my doctor
prescribed high
> blood pressure meds. The stress seems worse now that I'm alone. I
think
> it's because I realize I could be isolated for quite a long time. I
can't seem to find
> any lone guys my age to "hang out with". They are all married or
attached to
> a significant other and hang out with other couples. An old friend
living back East
> lost his wife a year ago and after grieving a few months began
dating again
> and said he never thought he would ever be this happy again. He
says he
> feels badly for me because I may not be able to achieve true
happiness again
> for many years because we are quite young yet. We don't communicate
any more because his conversation revolves totally around his lady
friends.
>
> Caregivers groups I've found seem to have no one in my situation.
The attendees
> are mostly young women who have parents with Alzheimers or old
women whose husbands have the disease. There are a couple of men but
they are 15 to 20
> years older than me and are content to just be home and rest all
day.
>
> I've thought of moving back East again but I no longer have
relatives there and old friends have retired and moved to the
SouthEast.
>
> Perhaps I'll find some help here.
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

My wife who is in Alzheimers stage 6 has been living at an assisted
living facility for 5 months and seems quite happy lately in her new home.
She cried often living at home most likely because there was just the two of
us and she was expecting me to be her entertainment director all the time.
I prefer to read, surf the internet, watch the History Channel, and
work out at the gym. We are both 66 and retired to CA from NJ about 6 years
ago before the disease began. It began to take hold soon thereafter
before either of us had a chance to develop new friends. So my wife is doing
ok, at least in her own mind as she has found many "friends" at her residence.

I'm ok during the day doing some volunteer work and going to the gym but that
long period from 5 PM til 9 AM, a span of 16 hours, is taking its toll on me
as I am all by myself then with no one to talk with all that time. And eating
out
alone is no fun. I've never been on any meds but recently my doctor prescribed
high
blood pressure meds. The stress seems worse now that I'm alone. I think
it's because I realize I could be isolated for quite a long time. I can't seem
to find
any lone guys my age to "hang out with". They are all married or attached to
a significant other and hang out with other couples. An old friend living back
East
lost his wife a year ago and after grieving a few months began dating again
and said he never thought he would ever be this happy again. He says he
feels badly for me because I may not be able to achieve true happiness again
for many years because we are quite young yet. We don't communicate any more
because his conversation revolves totally around his lady friends.

Caregivers groups I've found seem to have no one in my situation. The attendees
are mostly young women who have parents with Alzheimers or old women whose
husbands have the disease. There are a couple of men but they are 15 to 20
years older than me and are content to just be home and rest all day.

I've thought of moving back East again but I no longer have relatives there and
old friends have retired and moved to the SouthEast.

Perhaps I'll find some help here.








[Non-text portions of this message have been removed]

Hi,

        It certainly looks like no one has been at this site since September of
2006.    I attempted to register with the site and was accepted by the
moderator.  At least we know the moderator is here.  If anybody is there can we
get this site active again?

        My name is Bill.  I live in Cumberland, Rhode Island.  I am 63, my wife
is 73.  We have five children, all from her first marriage.  We have been
married 38 years.  She was diagnosed with Alzheimer's and 2002.  I left the
workplace in 2003, to be home with her full time.  I was too late.  Alzheimer's
had already stolen my bride.  For 17 months, I pretty much stayed home with her
24/7.  Her condition continued to deteriorate and mine did as well.  Attempts to
get her to accept adult day care failed.  Attempts at in-home respite care
failed.  After those 17 months of solitary with her I was an emotional,
physical, and mental wreck.  I was finally able to get her to accept the adult
day care.  This very well could have saved my health or my sanity or both. 
After a gradual beginning she now attends five days a week.  Except for this
huge respite, (and 2 hours monthly to attend my support group meeting) I am sole
caregiver to my wife.  She is now pretty firmly entrenched
  in stage six.  I am also a regular attendee of an Alzheimer's support group
that I fear might soon be closing down.  So I have decided to go online to look
for support groups.  I was thrilled to find there is something out there.  The
old adage that "misery loves company." is certainly true in my case.  I believe
it is going to be great to commiserate with so many others who understand what
I'm going through.  And you certainly do from what I've read.  Many of you are
shouldering an even larger load that I am, and it is encouraging to see how well
you are holding up.  I hope that I can add a little something to help shoulder
the load that we all are carrying.

               I really do wish I had gone online for support groups while I was
in solitary.  I do believe that would've made all the difference in the world
for me.  While there was a time when I thought I could handle this alone, I
certainly know now that that is not the truth.  I often tell the others in my
support group that they are my crutches.  I can now tell them that they don't
have to support all my weight.  Thank you all ahead of time for what I am sure I
will get from you all.

   Bill


---------------------------------
Tonight's top picks. What will you watch tonight? Preview the hottest shows on
Yahoo! TV.

[Non-text portions of this message have been removed]

The Caregiver's Beacon Newsletter Digest 9/2006
Summary of the Contents of The Caregiver's Beacon Newsletter for
September 2006

INSIDE THIS ISSUE

If you have trouble with links, the complete issue is available
online at
http://www.ec-online.net/Knowledge/Newsletters/beacon091506.htm

Feature Article: Where Is the Joy in Alzheimer's Caregiving? By
Beverly Bigtree Murphy
Solution Sets: Long-Term Care Insurance Analyzer
Five Minutes With… Harry (Rick) Moody on Spirituality and Aging
Prism Learning Library: Diabetes
Book Reviews: Nursing Homes: The Family's Journey by Peter Silin
Subscription Information

The newsletter is e-mailed monthly to all subscribers free of charge.
You may subscribe to the newsletter at the front page of the website
at http://www.ec-online.net or http://www.ec-
online.net/Knowledge/Newsletters/subscribe.htm.

ElderCare Online (http://www.ec-online.net) and ALZwell Caregiver
Support (http://www.alzwell.com) provide some of the most
comprehensive libraries of eldercare articles, practical educational
materials and supportive discussion groups on the Internet. For the
past ten years we have been helping caregivers (especially those
coping with Alzheimer's Disease and related dementias) to maintain
quality of life for themselves and their aging loved ones.

The Caregiver's Beacon Newsletter Digest 11/2005
Summary of the Contents of The Caregiver's Beacon Newsletter for
November 2005

INSIDE THIS ISSUE

If you have trouble with links, the complete issue is available
online at
http://www.ec-online.net/Knowledge/Newsletters/beacon110105.htm

WELCOME: "Healthy Lifestyles"
Feature Article: Talking with Aging Parents About Finances by Mark
Edinberg, Ph.D.
Book Review: "My Mother's Voice" by Sally Callahan
Caregiver Store: Prism Personal Organizer and Medical Manager Special
Edition
Healthy Aging: "Influenza and Pneumonia in Older People" by Rich
O'Boyle
Healthy Aging: High Blood Pressure in Older People
SUBSCRIPTION INFORMATION

The newsletter is e-mailed twice each month to all subscribers free
of charge. You may subscribe to the newsletter at the front page of
the website at http://www.ec-online.net or http://www.ec-
online.net/Knowledge/Newsletters/subscribe.htm.

ElderCare Online (http://www.ec-online.net) and ALZwell Caregiver
Support (http://www.alzwell.com) provide some of the most
comprehensive libraries of eldercare articles, practical educational
materials and supportive discussion groups on the Internet. For the
past six years we have been helping caregivers (especially those
coping with Alzheimer's Disease and related dementias) to maintain
quality of life for themselves and their aging loved ones.

Hi Patrick, well it sounds like my life only reversed, but now my husband is
in a nursing home and very happy there, now, but you didn't say where out
west you were, and the Alzheimers Assoc. has many social workers that can
help you, I don't understand. My husband did not like the Day Centre but I
had him picked up by the bus service that was provided and he finally fit in
  you have to do what is good for you too. She will be fine, they are there
to help you. I think you need a social worker to help you. It is a long road
and you need help to walk it, my husband finally fit in fine, and he was
there for over 3 yrs. but I got my name on a list for a nursing home and ,
now he is settled in, and it was a fight too. You only have to ask at the
Alzhemers Assoc. and they have the resorces to help you. Let me know how you
get on, you must stay strong, or if you get sick, who will take care of you?
Anne McDermott

-------Original Message-------

From: Patrick Gorman
Date: 08/14/05 23:45:48
To: spouseswithalzheimers@yahoogroups.com
Subject: [Spouses with Alzheimers] new caregivers story

My wife and I retired to the west coast 3 years ago from the east coast.
Just after we arrived, she began having memory problems and soon was
diagnosed with Alz and her doctor took away her driver's license. My wife
and I often had independent lives during the day as we both worked and then
were together the rest of the day. Now we are always together. Though we’ve
tried, we have not been able to make any friends here so we still know no
one. As I expected, people seem to avoid you when they notice the short term
memory loss and an inability to form sentences that relate to the topic
being discussed. My biggest problem is her expectation of me to be her
entertainment director every day. Each morning, with purse in hand, she says
to me "I'm ready, let's go". But most times there's nowhere to go. Her only
interests are mall shopping and eating out, which we do some of the time but
not every day. She buys sunglasses and purses most days we go out so we’ve
got quite a few. The next problem is loneliness. I have no one to talk with
and while I was working, my job required that I talk all day long.

To try and get some respite, I’ve tried leaving her at a day care facility
but she got so upset because nearly everyone was in the late stages of Alz
and this depressed her very much as it only served to remind her of what’s
ahead for her. So now I’m looking for a woman to provide in-home monitoring
for my wife for a few hours several times a week so that I can get some
relief and try to make friends doing what I've done in the past (tennis,
bridge, gym, volunteering). I don’t want to leave her alone as she has no
perception of time and often looks for me outside the house and cannot find
her way back home. Other than total short term memory loss and an inability
to hold a conversation, her difficulties are minimal and she is very alert.
The role I need of a monitor is similar to that of baby-sitting. I’ve
contacted a number of organizations but they don't offer this service and
can't offer any suggestions either. Instead, they provide someone who
provides
Light housecleaning
Personal hygiene/care
Medication preparation and delivery
Transportation to appointments
Assistance with meals and
Assistance with ambulation and transfers and other safety assurance.

But no one seems to provide just a monitor function. I told them the person
need not be qualified for nor be required to perform any of those other
functions. And they indicate there’s no guarantee the same person would be
available each time and sometimes could be a male, which I’m not happy
about. They suggest I look somewhere for a volunteer as their fees assume
all these roles are being performed since their people are highly qualified.
Life would have been so much simpler had we not retired. At caregiver’s
meetings, I found out that friends of the Alz patient will often help out by
taking their Alz friend out shopping, etc. and they suggest I do the same.
But we don’t have that advantage way out here as all our friends live 3000
miles away.

I'll keep making phone calls and hope I can find some help with enough
perseverence. For my own health, I've got to.




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[Non-text portions of this message have been removed]

My wife and I retired to the west coast 3 years ago from the east coast.
Just after we arrived, she began having memory problems and soon was
diagnosed with Alz and her doctor took away her driver's license. My wife
and I often had independent lives during the day as we both worked and then
were together the rest of the day. Now we are always together. Though we’ve
tried, we have not been able to make any friends here so we still know no
one. As I expected, people seem to avoid you when they notice the short term
memory loss and an inability to form sentences that relate to the topic
being discussed. My biggest problem is her expectation of me to be her
entertainment director every day. Each morning, with purse in hand, she says
to me "I'm ready, let's go". But most times there's nowhere to go. Her only
interests are mall shopping and eating out, which we do some of the time but
not every day. She buys sunglasses and purses most days we go out so we’ve
got quite a few. The next problem is loneliness. I have no one to talk with
and while I was working, my job required that I talk all day long.

To try and get some respite, I’ve tried leaving her at a day care facility
but she got so upset because nearly everyone was in the late stages of Alz
and this depressed her very much as it only served to remind her of what’s
ahead for her. So now I’m looking for a woman to provide in-home monitoring
for my wife for a few hours several times a week so that I can get some
relief and try to make friends doing what I've done in the past (tennis,
bridge, gym, volunteering). I don’t want to leave her alone as she has no
perception of time and often looks for me outside the house and cannot find
her way back home. Other than total short term memory loss and an inability
to hold a conversation, her difficulties are minimal and she is very alert.
The role I need of a monitor is similar to that of baby-sitting. I’ve
contacted a number of organizations but they don't offer this service and
can't offer any suggestions either. Instead, they provide someone who
provides
Light housecleaning
Personal hygiene/care
Medication preparation and delivery
Transportation to appointments
Assistance with meals and
Assistance with ambulation and transfers and other safety assurance.

But no one seems to provide just a monitor function. I told them the person
need not be qualified for nor be required to perform any of those other
functions. And they indicate there’s no guarantee the same person would be
available each time and sometimes could be a male, which I’m not happy
about. They suggest I look somewhere for a volunteer as their fees assume
all these roles are being performed since their people are highly qualified.
Life would have been so much simpler had we not retired. At caregiver’s
meetings, I found out that friends of the Alz patient will often help out by
taking their Alz friend out shopping, etc. and they suggest I do the same.
But we don’t have that advantage way out here as all our friends live 3000
miles away.

I'll keep making phone calls and hope I can find some help with enough
perseverence. For my own health, I've got to.

I would like to welcome Patrick to our club.  If you have any
questions please post it and we will try and answer to the best of my
ability.  I am the founder of the club and as a matter of interest I
am the same age.

The Founder

Ed

--- In spouseswithalzheimers@yahoogroups.com, "Anne McDermott"
<lesanne@r...> wrote:
Nice to meet you Anne. I recently recieved The Proclamation for
Advocacy Award at our State Capitol in March and I will be going to
Washington D.C. next week to speak on a panel regarding EOAD. I
would love to hear some of what you have done.

Tracy



> Hello Tracy , my name is Anne and my husband of 8 yrs, was
diagnosed the
> second year we were married, I am 67, a young 67, he is now in a
nursing
> home and I too am an activist and speak out for my husband and any
others
> who need direction.
> Thank you for the invite .
> Anne
>
> -------Original Message-------
>
> From: Tracy Mobley
> Date: 04/19/05 17:00:00
> To: spouseswithalzheimers@yahoogroups.com
> Subject: [Spouses with Alzheimers] New Here
>
>
> Hi my name is Tracy and I have Early Onset Alzheimer's Disease. I
am a
> very big activist and speak out for those that no longer can.
> Feel free to join me in Dementia Rescue
>
> www.groups.yahoo.com/group/dementiarescue
>
> I promise you will recieve warmth, support as well as friendship
> through this journey that we share.
>
> Tracy
> EOAD, age 41
> Missouri
>
>
>
>
>
>
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/spouseswithalzheimers/
>
> To unsubscribe from this group, send an email to:
> spouseswithalzheimers-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
>
> [Non-text portions of this message have been removed]

Hello Tracy , my name is Anne and my husband of 8 yrs, was diagnosed the
second year we were married, I am 67, a young 67, he is now in a nursing
home and I too am an activist and speak out for my husband and any others
who need direction.
Thank you for the invite .
Anne

-------Original Message-------

From: Tracy Mobley
Date: 04/19/05 17:00:00
To: spouseswithalzheimers@yahoogroups.com
Subject: [Spouses with Alzheimers] New Here


Hi my name is Tracy and I have Early Onset Alzheimer's Disease. I am a
very big activist and speak out for those that no longer can.
Feel free to join me in Dementia Rescue

www.groups.yahoo.com/group/dementiarescue

I promise you will recieve warmth, support as well as friendship
through this journey that we share.

Tracy
EOAD, age 41
Missouri






Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/spouseswithalzheimers/

To unsubscribe from this group, send an email to:
spouseswithalzheimers-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




[Non-text portions of this message have been removed]

Hi my name is Tracy and I have Early Onset Alzheimer's Disease. I am a
very big activist and speak out for those that no longer can.
Feel free to join me in Dementia Rescue

www.groups.yahoo.com/group/dementiarescue

I promise you will recieve warmth, support as well as friendship
through this journey that we share.

Tracy
EOAD, age 41
Missouri

The Caregiver's Beacon Newsletter Digest 4/2005
Summary of the Contents of The Caregiver's Beacon Newsletter for
April 2005

INSIDE THIS ISSUE

If you have trouble with links, the complete issue is available
online at
http://www.ec-online.net/Knowledge/Newsletters/beacon040105.htm

WELCOME: "Renewal"
FEATURE ARTICLE: "Recognizing and Treating Depression: A Guide for
the Elderly and Their Caregivers"
HEALTHY AGING: "The Psychology of Confidence" by Thomas J.
Schumacher, Psy.D., R-CSW
PRACTICAL ARTICLE: "Stretch Your Eldercare Dollars" by Phyllis Staff
BOOK REVIEW: "Waiting for the Morning: A Mother and Daughter's
Journey Through Alzheimer's Disease" by Brenda Parris Sibley
(Reviewed by Mary B. Walsh)
SUBSCRIPTION INFORMATION

The newsletter is e-mailed twice each month to all subscribers free
of charge. You may subscribe to the newsletter at the front page of
the website at http://www.ec-online.net or http://www.ec-
online.net/Knowledge/Newsletters/subscribe.htm.

ElderCare Online (http://www.ec-online.net) and ALZwell Caregiver
Support (http://www.alzwell.com) provide some of the most
comprehensive libraries of eldercare articles, practical educational
materials and supportive discussion groups on the Internet. For the
past six years we have been helping caregivers (especially those
coping with Alzheimer's Disease and related dementias) to maintain
quality of life for themselves and their aging loved ones.

Hi Anne,

The Spurling you attended school with wasn't me.  My husband is Delmar
Spurling.  where did you attend school?

Thank you for your kindness.

Rhonda E. Spurling


[Non-text portions of this message have been removed]

Hello Rhonda, Anne here, I am concerned about you, and your roller coaster
ride. You are not alone , and we are here to help in anyway we can.I asked
you to get in touch with the Alzheimers Assoc. in your area and or write to
me and and I can get you some help.
In regards to NOT wanting to put your husband in a wheelchair, maybe that
would be better for Him, and give you easier access to getting around with
him.
I wish you would email me at  lesanne@... and I can help you walk
this long road.
There is help out there, and it is just waiting for you to ask.
Love Anne

-------Original Message-------

From: spouseswithalzheimers@yahoogroups.com
Date: 02/22/05 15:06:19
To: spouseswithalzheimers@yahoogroups.com
Subject: Re: [Spouses with Alzheimers] Long Term Care Rhonda

Hi Ed,

Thank you for your encouragement.  This is an emotional roller coaster for
sure.

I'm trying to find something to engage my husband to prevent him from
sleeping so much.  He's weak and can hardly walk.  I don't want him to be in
a
wheelchair.  I can't lift him so it's frightening to start having the
thoughts that
this is getting beyond me.  I'm only 49, I should be physically strong
enough
to do this.

Thanks for your encouragement.
Rhonda



[Non-text portions of this message have been removed]


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Yahoo! Groups Links

To visit your group on the web, go to:
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spouseswithalzheimers-unsubscribe@yahoogroups.com

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[Non-text portions of this message have been removed]

Hi Ed,

Thank you for your encouragement.  This is an emotional roller coaster for
sure.

I'm trying to find something to engage my husband to prevent him from
sleeping so much.  He's weak and can hardly walk.  I don't want him to be in a
wheelchair.  I can't lift him so it's frightening to start having the thoughts
that
this is getting beyond me.  I'm only 49, I should be physically strong enough
to do this.

Thanks for your encouragement.
Rhonda



[Non-text portions of this message have been removed]

Hi Rhonda
I know just how you feel Rhonda it is a matter that is hard to get
your arms around, those of us who have placed our spouse have
wrestled with it from all angles.  In my case it was my Doctor
telling me that it was taking its toll on me and for the good of my
health he thought it was best.  I have second quessed myself many
times but it always came back to my health.  There comes a time when
you have to start thinking about yourself and you will know when.  Ed

My dear Rhonda, first let me say I used to go to public school with a
Spurling???
Well can I speak frank to you , it is ok to feel how you do, I have been
there, and yes it is hard.
Now, how about a day center like 9 to 4 maybe a couple of days to start,
they pick him up and drop him off.
I don't know where you are, but there are great support groups and
councilors  to help you in getting him placed in either facility .
You have to look after yourself first, that is what I was told so often and
now I am supporting others who have or are walking my path.
You will not have any peace if you become sick and can't take care.
I don't know if you have support, family, etc. but planning a sitter can be
arranged with help from the Alzheimer's Assoc. they are there for you ,only
a call away.
You can email me any time and we can chat.
Please let me help, in any way I can.
I remember when Ed first emailed me and I was so in denial . So let me know
how I can help.
Love Anne McDermott   lesanne@...

-------Original Message-------

From: spouseswithalzheimers@yahoogroups.com
Date: 02/18/05 12:04:40
To: spouseswithalzheimers@yahoogroups.com
Subject: Re: [Spouses with Alzheimers] Placement in Long Term Care Facility

Hi!

My husband has dementia.  It's getting harder by the day to care for him at
home.  Last night about 1:00 he for some reason went into the kitchen and
fell.
It took me some time to be able to get him up.  He's forgetting how to
stand, for me to get his clothes on him.  His walking is getting harder.
Sometimes
he takes little maybe 3 inch steps.  I want to first try getting a sitter or

something.  The "home" thing is something I can't get my brain around yet.

Rhonda E. Spurling


[Non-text portions of this message have been removed]




Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/spouseswithalzheimers/

To unsubscribe from this group, send an email to:
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[Non-text portions of this message have been removed]

Thanks yourself Ed, and yes we all hold on to each other in facing this
journey.
I am on MSN under :  anne_mcdermott65@...  and or
I am on Rogers Yahoo under: anne_mcdermott64@...
  and we can chat back and forth, when I am on line.
Regards to all, Anne
-------Original Message-------

From: spouseswithalzheimers@yahoogroups.com
Date: 02/18/05 11:51:29
To: spouseswithalzheimers@yahoogroups.com
Subject: [Spouses with Alzheimers] Long Term Care


Thanks Anne for sharing your story, I think it is the hardest I have
faced during this journey.  On the positive we don't go it alone.






Yahoo! Groups Links

To visit your group on the web, go to:
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To unsubscribe from this group, send an email to:
spouseswithalzheimers-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




[Non-text portions of this message have been removed]

Hi!

My husband has dementia.  It's getting harder by the day to care for him at
home.  Last night about 1:00 he for some reason went into the kitchen and fell.
  It took me some time to be able to get him up.  He's forgetting how to
stand, for me to get his clothes on him.  His walking is getting harder. 
Sometimes
he takes little maybe 3 inch steps.  I want to first try getting a sitter or
something.  The "home" thing is something I can't get my brain around yet.

Rhonda E. Spurling


[Non-text portions of this message have been removed]

Thanks Anne for sharing your story, I think it is the hardest I have
faced during this journey.  On the positive we don't go it alone.

Hello Ed and Members,
I too had to put my husband in a Long Term Care Facility, and I did have to
wait for the call that there was a bed available.
Well you are never ready for that call, and last April 16th I got the call
to place my husband.
We got married in 1997 and in 1999 he was diagnosed with Alzheimers.
I then had him picked up each day to go to a day centre ,which was in the
same building that we had moved into, for his sake .
Yes it is very hard to have to make that move for their safety and when I
felt I could no longer look after him, I felt so guilty at first.
I too have to drive 35 min. to visit, but I am in the plans to move to be
closer to him.
I go to two support groups each month and find that the friends that you
make is so rewarding and comforting .
So as we walk the walk, knowing that our loved one is safe and warm, and
cared for, I can rest and keep up my strength for his loving smile each time
I walk in to his room.
Love to you all.
Anne McDermott

-------Original Message-------

From: spouseswithalzheimers@yahoogroups.com
Date: 02/17/05 22:29:16
To: spouseswithalzheimers@yahoogroups.com
Subject: [Spouses with Alzheimers] Placement in Long Term Care Facility


Hello Members
Four years ago I was forced to place my lovely wife in a retirement
home that had a floor for people with alzheimers and that seemed at
the the time the hardest thing I ever had to do in my life.  My
health made it too difficult to look after her and advice of my
Doctor I found her a place.  As time has gone on she has worsened and
the care they could provide was not sufficient to meet her needs so
again I had a decision to make to place her on the list for long term
care.  The wait was going to be almost two years and now a year later
I had to broaden the locations for her as the time frame had not
changed, still two years.  Two weeks ago I got the phone call they
had a room for her in a little town about 37 min from here, although
it doesn't seem like much, each time I leave her from a visit it is
harder to do as I know she is not in the same city. Again the
decision to move her was hard.  On the bright side the home is new
and closer to my daughters so they are visiting more and that is a
plus.
Just wanted to share that with you and if anyone else would like to
share what has gone on with them please let us hear about it.
The Founder of Club Ed






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Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




[Non-text portions of this message have been removed]

Hello Members
Four years ago I was forced to place my lovely wife in a retirement
home that had a floor for people with alzheimers and that seemed at
the the time the hardest thing I ever had to do in my life.  My
health made it too difficult to look after her and advice of my
Doctor I found her a place.  As time has gone on she has worsened and
the care they could provide was not sufficient to meet her needs so
again I had a decision to make to place her on the list for long term
care.  The wait was going to be almost two years and now a year later
I had to broaden the locations for her as the time frame had not
changed, still two years.  Two weeks ago I got the phone call they
had a room for her in a little town about 37 min from here, although
it doesn't seem like much, each time I leave her from a visit it is
harder to do as I know she is not in the same city. Again the
decision to move her was hard.  On the bright side the home is new
and closer to my daughters so they are visiting more and that is a
plus.
Just wanted to share that with you and if anyone else would like to
share what has gone on with them please let us hear about it.
The Founder of Club Ed

Hi Members Because we are not having out monthly meetings please feel
free to post a question and I will give you the best answer I can.
Remember I check every day for posting.  Ed

The Caregiver's Beacon Newsletter Digest 9/2004
Summary of the Contents of The Caregiver's Beacon Newsletter for
September 2004

INSIDE THIS ISSUE

If you have trouble with links, the complete issue is available
online at
http://www.ec-online.net/Knowledge/Newsletters/beacon090104.htm

BOOK REVIEWS: Nursing Homes: The Family's Journey by Peter Silin
HOW-TO ARTICLE: Talking with Aging Parents About Finances by Mark
Edinberg
FEATURE ARTICLE: "Long-Term Care Insurance: The Basics"
SOLUTION SETS: Long-Term Care Insurance Analyzer
CAREGIVER STORE: The Prism Complete Organizer and Planner Special
Edition
SUBSCRIPTION INFORMATION

The newsletter is e-mailed twice each month to all subscribers free
of charge. You may subscribe to the newsletter at the front page of
the website at http://www.ec-online.net or http://www.ec-
online.net/Knowledge/Newsletters/subscribe.htm.

ElderCare Online (http://www.ec-online.net) and ALZwell Caregiver
Support (http://www.alzwell.com) provide some of the most
comprehensive libraries of eldercare articles, practical educational
materials and supportive discussion groups on the Internet. For the
past six years we have been helping caregivers (especially those
coping with Alzheimer's Disease and related dementias) to maintain
quality of life for themselves and their aging loved ones.