hi just wanted to introduce myself,im new to the group ,i was born with spina bifida L4-5 walk with crutches and leg braces,i do have a shunt.Regardless of my...
9810
Heather Troth
mctroth
Feb 6, 2011 10:20 pm
http://amateure-redtube.com/polo.php [Non-text portions of this message have been removed]...
9811
Vinnie F
metmaniac1088
Feb 6, 2011 10:35 pm
hey everyone, im new to the group and just wanted to introduce myself. I am 22 years old from new jersey with spina bifida. I'm looking to meet new people with...
9812
LightningGrl2121@...
lightningpri...
Feb 6, 2011 11:30 pm
Welcome Vinnie! My name is Summer. I am 27 from FL. I had the bladder augmentation at the age of 12. So, the procedure probably has changed since then. I was...
9813
Sara Schneider
coffteawoman...
Feb 8, 2011 7:24 pm
Diane Sawyer will be featuring Spina Bifida on "World News Tonight" tomorrow (2/9) at 6:30pm (not sure of the Time Zone). Spotlights will be on the Albertson ...
9814
Amber Kops
hot_blonde_o...
Feb 8, 2011 8:08 pm
Thanks for sending this Sara Amber K. ... From: Sara Schneider To: AC4SB group ; Adults w/ SB group ; AFW/SB group ; bifidachatgroup ; bifida-l ;...
9815
Angel Moore
amoore3596
Feb 9, 2011 5:58 pm
Hey! My daughter is 7 1/2 and her Sb is L4 L5 as well...she walks with her crutches and AFO's. She plays baseball and would love to play socer and basketball....
9816
dave manuel
countryman05...
Feb 9, 2011 6:32 pm
tell your daughter i said cool and that i am 37 now but played soccer on crutches in grade school til my mom took me off the team claiming that the couch told...
9817
mike mings
fire_investi...
Feb 9, 2011 8:06 pm
cool yeah theres nuttin we cant do if we have the determination to do it. ... From: dave manuel <countryman052000@...> Subject: Re: [Spina Bifida...
9818
mike mings
fire_investi...
Feb 9, 2011 8:16 pm
yeh there is nothing we cant do if we put our minds to it and are very determined to do so ... From: Angel Moore <amoore3596@...> Subject: [Spina Bifida...
9819
Sara Schneider
coffteawoman...
Feb 9, 2011 9:27 pm
Since lots of people w/ SB suffer from ADHD, I thought I'd post this interesting article... and it's even a way to fight obesity- another condition that many...
9820
gard1511@...
gard1511
Feb 10, 2011 11:56 am
Is there any one with Spina Bifida that has an alliery ti shrimp??? My daughter is 22 nad she ate shrimp for the first time last night and she had welts all...
9821
bmoreabilities
Feb 12, 2011 6:04 pm
B'moreAbilities offers Dance classes for ones with physical and developmental disabilities, 90% of dance is non-verbal,basac dance classes teaches ones social...
9822
Julie
peepers78
Feb 14, 2011 2:27 am
Hi, my name is julie and I have a beautiful little 2 year old daughter who was born with myelomeningocele. She is L3-L5. She currently wears braces and walks...
9823
stacey1149
Feb 14, 2011 1:59 pm
Hi Julie, Welcome to the group! My daughter has more of the VACTERL issues (but also meningocele) and is ambulatory, so I can't advise about the wheelchair,...
9824
Julie
peepers78
Feb 14, 2011 3:24 pm
Hi everyone, Thank you so much everyone. I received wonderful advice :) I am so glad I found you guys!! I am sure I will have a million more questions....
9825
Heather kane
heatherkane1
Feb 14, 2011 5:23 pm
Hi Julie, My name is Heather and I have a 10 year old son, Daniel, with SB. Welcome to the group. Olivia absolutely needs her chair before kindergarten. She...
9826
Angel Moore
amoore3596
Feb 15, 2011 2:41 pm
Wow! What did they do with all of your records and ultrasound pics??? My daughter, Brianah, is L4- L5 and walks with crutches and AFO's. She has a wheelchair...
9827
Heather Troth
mctroth
Feb 15, 2011 3:39 pm
http://glaj.net/about.php [Non-text portions of this message have been removed]...
9828
mike mings
fire_investi...
Feb 15, 2011 11:14 pm
hi angel ,,my name is mike im in the group as well,i tried to add u yahoo but it is saying its not a valid ID,,if u would like my ID is...
9829
Kalen
trapadlrow
Feb 17, 2011 12:51 pm
... I guess that explains why I can't fly under my own power, then. I'm just not determined enough! :) Kalen...
9830
Kalen
trapadlrow
Feb 17, 2011 12:53 pm
I'm sure it has nothing to do with spina bifida, but what you describe is a potentially very serious allergy. It wouldn't hurt to get her tested for other...
9831
Jim Brinkman
jim.brinkman70
Feb 17, 2011 5:00 pm
I have spina bifida and I am allergic to shell fish.But I don`t think it`s related to my spina bifida. ________________________________ From: Kalen...
9832
Sara Schneider
coffteawoman...
Feb 17, 2011 7:23 pm
Tennessean With Spina Bifida To Appear In ABC's "What Would You Do?" on Tuesday, Feb. 22 at 10 pm eastern... No clue what it's about, just saw that posted on ...
9833
wheelzuk or Johnny wh...
wheelzuk
Feb 18, 2011 7:26 pm
Hi Kimberely, I'm from the UK, so, not able to comment on what hospitals and clinics are nest for your child. I wonder if SBAA in Washington may have the info...
9834
christina FULTON
cmpopafulton
Feb 18, 2011 8:28 pm
In my opinion The best Neorosurg team is at Rainbow Babies in Cleveland. Dr. Cohen and Dr. robinson..... ... From: wheelzuk or Johnny wheelz...
9835
wheels
hot_blonde_o...
Feb 18, 2011 11:43 pm
Evening everyone, I'm a T-12 myelomeningocele SBer and as of recent appear to be having female issues, mainly, I've been on my cycle for about a week and a...
9836
Sara Schneider
coffteawoman...
Feb 19, 2011 3:51 am
Amber, Make an appointment w/ your gyno immediately and make him/her aware of your gynocological family history w/ as much detail as you can. I have almost the...
9837
Annie Francisco
annie.francisco
Feb 19, 2011 4:02 am
Hi John, I just read your post. I am Annie (half Brazilian-half Filipina) living in Singapore. I had surgery when I was 17 for a tethered cord & meningocele...
9838
dave manuel
countryman05...
Feb 19, 2011 5:16 am
annie that is why you always always get a second and even third oppion before doing and that is after doing your own research on it to see what the pros and ...
