hey, im tony a 39 yr old male from rhode island with spina bifida . i have never met or talked to anyone with it and would like to talk to males or females...
... HEY WHEELIEGURL DO GIRLS WITH SPINA BIFIDA HAVE A SMALL VAGINAL OPENING MY G/F SAID SOMTHING ABOUT THAT I WAS WANTING TO KNOW IF YOU HAVE HAD ANY PROBLEMS...
Hello All! I am a 32 year old male with Spina Bifida. I would like to know if anyone has had this done or know someone who has. If your not sure what it is...
I am a 36 y/o female with SB. I am awaiting an ankle fusion on my right foot due to loss of muscle function in this foot getting worse as I get older. Is...
Hi, My name is Rey.I have an SB group and we've talked about that before(actually,several times),if you want the URL just email me and I'll send it to you....
Hi there, I was wondering if anyone knows a group that talks about catheters. I have OSD and bladder problems comes with it. I am trying to catheter myself but...
Megan got her new braces Monday in Houston. Thanks Tom & Ed. The new style is really cool. Tom you are the Best. #1 And again Thanks Shrinners. Every-1 have a...
I keep getting an email about what?????/ _________________________________________________________________ Check out MSN PC Safety & Security to help ensure...
Hello, This post is really important. I need to talk to many diffrent ones who wear braces and or who are not as tall and mostly need there clothing more...
Alison, I'm 22 yrs old and 7 1/2 months pregnant with my first baby, a boy due May 20th. So, I can't give you a birth story but I can share things I've gone...
Hi-- Regarding your question, we use Dr. Bauer for urology at Boston Childrens Hospital. In fact, we were just there on March 1. Even though we have top...
Hi , Linda. My name is Misty Diaz. If you need to know anything, post it. There's answers here, if not then there are people who are in the same shoe. BYE!!...
Hi Linda-- Welcome to the group! Everyone here is touched by SB in some way. Many of us are parents of kids with SB, and others are adults with SB. If you...
It does sound like it could be a urinary infection. The best thing I have found for that is to drink a LOT of cranberry juice and even just water to flush...
Well I've gotten a fever ever since Wed night. All day every 4 hrs I get a 101 or a 102 fever. Something is wrong. The doctros here in Bakersfield dont know...
Hi I am 45 years old and would like to know more about this group. I have spina bifida and feel very much alone with my problems. Thanks l. Hall Do you...
Hi Misty, Sorry to hear all you have been throught. Keep the faith and know all things are possiable, Bobbie is right on the money with the secound opion on...
If the pain is that bad, and all the doctors agree that it is due to tethered cord, then I would schedule the surgery right away. If tethered cord was truly...
Does anyone eles have problems using the bathroom, i have a stoma and it gets this big hard knot right under it. and i wont beable to walk or really move, when...
We have contacted a second opinion really 3 of them . And my leg camps are so bad, thar i often dont get to sleep intell 6am. Then I wake up around 2pm. Its...
I was just wondering if their is anyone on here that goes to childrems hospital in boston,MA it would just be interesting to talkto someone who goes to the...
Hi Misty, Although untethering seems to be relatively common these days, it's still surgery. My advice would be to definitly get a second opinion from a top...
Hello Misty, sorry to hear you have to have another surgry , but untethering your cord will not stop you from doing what you are doing with your life and it is...
Hi, my name is Misty Williams i'm 19rs old from Bakersfield Cali. I just got married November 1,03. I have spina Bifida, and since i was born i've had 19...
Hi everyone, I have a question. I am 31yrs old and I have SB myelomeningeocele, I wear leg braces, I have a shunt for hydrocephalus, I catherize myself every...
Hello Matt Muckleroy! Fruit and Cereal Fiber May Reduce Cardiovascular Disease Risk In a recently published study, researchers from Harvard and the University...
You can try contacting the President of the SB association in Long Island (Nassau County). Her name is Laura Petranto, and her e-mail address is below. You...
Antioxidants Appear to Protect Against Type 2 Diabetes Jukka Montonen of the National Public Health Institute in Helsinki, Finland, and team, tracked dietary...
Hi, I was born with S.B. I need 2 new leg braces which I cant afford and my insurance doesnt cover it, I cant go on medicaid because my husband makes above the...
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