Makenna uses 10-french size caths do you have website for free trial caths? Thanks! Marsha M. Lee  www.caringbridge.org/visit/MakennaRose  ... From: Jo_...
Hi all! My name is Jennifer Sims, and I have a 3y.o. son, Gavin, with spina bifida. He also has hydrocephalus, arnold chiari malformation, leg paralysis, and...
Hi Jennifer, I believe reflux can cause the Erosive Esophagitis. My daughter (11) has had it since she was very young, too. She used to be on pepsid then they...
Thanks Linda, what do you mean by watch her throat...related to shunt malfuncion?? Just curious because I am trying to get all the info. I can, seeing as my...
Also, be aware that arnold chiari can also cause swallowing issues. So, the vomiting and reflux could be related to that as well. Summer In a message dated...
Hi Jennifer, Welcome to the group, I'm glad you found us. I'm a 44 yr. old mom who has SB myself. Many kids with SB have issues with swallowing and reflux....
Hi Jennifer, In the past, my daughter's throat has been affected when she has a shunt malfunction. with her, there's been 'hyper ability' like her brain kicks...
A woman in another group I'm in mentioned her daughter exibits hyper ability when she's suffering from a shunt malfunction. I've never heard of that before,...
Sara, It was I who posted that on this group, but I'd be interested to see if anyone else has experienced that, too. Thanks for mentioning it again. Linda...
My daughter was diagnosed with ADHD at the ago of 4. She was put on ritilan at the age of 5. The meds didn't work so I took her to get a second opinion. The...
I believe so but I dont ' know how it compares to the general population. There can be learning/attention issues because of the hydrocephalus. linda    ...
I have not heard of a link. I do not have ADHD, and can't think of anyone I know personally who has SB and ADHD. I do have learning issues with math, and...
I am pregnant with a little boy that is going to be born with Spina Bifida. I am 18 weeks into my pregnancy and got hit with alot of news today. I am looking...
Angela, I am the mother of a 10 year old girl that was born with SB level T1/L12 she is paralyzed from her belly button down. She also has a shunt in her...
Hi Angela, Congratulations on your pregnancy. You are about to embark on a very life changing mission with your little one. Spina Bifida babies require a lot...
Hi Again Angela, One thing I forgot to mention: My daughter is now 23 years old, has a part-time job, absolutely loves her friends, Facebook and Church...
Hey Angela, I have a little girl that is 6 years old that has spina bifida...I didn't find out she had Spina Bifida until 11 days before I had her! It was a...
Angela, My story is a little different. We are an adoptive family that chose a little girl with SB. We have not brought her home yet but I did the same...
Amy, God bless you and your family. I think that it is great that you have chosen to adopt a special needs child. I wish you all the best. When they told me...
HI I have an eleven year old with SB. We did not know he was going to be born with SB and it was a shock and he went through two surgeries before he was...
Hi Angela: I'm glad you found our group. First of all take a deep breath. I know this is overwhelming news. Just take it a day at a time. My name is...
Hi Angela! We have a 14 month old son who was born with SB. We found out at the 20 week ultrasound, initially because he had clubfeet and the doctor ordered a...
Angela, PS: I didn't see that you are in Norfolk until just now. Other moms who are in that area can advise you about where their children get care, and...
Angela: I apologize for not responding to you sooner. My cousin has a son with SB. He was diagnosed with the worse form of the disease when his mother was 16...
