I'm having trouble trying to teach my 5 yr old girl to push (no: 2 that is) on the toilet. She has no feeling at all in that region and sometimes just holds...
Unfortunately, you are describing spina bifida. Most of these kids have no feeling there, called "anal wink", which allows most people to push (open and close...
... and ... softeners, ... constantly ... Hiya If your little one is not latex intolerant or allergic you could try training the pushing by getting her to blow...
HI my name is Tracey and my daughter Caitie is 13 and has sacral agenesis, lipomyelomeningocele, arnold chiari ii, tethered cord X2, neurogenic bladder/ bowel....
Just wanted to say WELCOME! I don't have advice as my daugther is 4 and just starting kindergarden in September. Look forward to getting to know you! Tanya...
... keep ... to ... Hi Lisa, Thanks for the advise, I went to Houston Monday, to see what they thought. They cut all the callis off expoesing the deep wound....
Hi! My name is Martina and I have a 10 yr old girl with Spina Bifida. We have just gone through the 5 toughest months ever with surgeries for spinal fusion X2,...
... My daughter has has the same probleam and yes!! it's very hard to deal with it i tried everything from fiver cereals, jelly, zopasotories and it works but...
Hi every-1. My dougther will be 10-in march. I see as we get older it looks like some of the care givers are not as careing. We just joined the Shriners In...
Hi there, I know what you mean. I have a 10y/o right now that is at the Shrine Hospital in Minnesota. They are the best. I wouldn't trade them for anything....
Hi, I have a videotape in a sealed package (never watched) whose title reads "safe and easy intermittent catheterization". I assume it's a video to teach...
Id like to thank Dr.Kent, Lisa & the Staff at the Shriners Hospital in Houston Texas. "Yall are the best". And Steve at the shriners brace place thanks For the...
My daughter and I went to clinic yestday and I mentioned the fact that my daughter was having trouble with loose stools. They suggested that she might have a...
Hi, I am new to this site. I have 5 year old indentical twin boys. I just found out one of them does not have a tail bone. I have been told it is called SB...
http://messageboards.ivillage.com/iv-psequipex/ Was just searching around and found this site that is brand new. They are trying to match up families with...
I didn't want to see you left hanging with no reply after 8 days. :) I have a daughter 4 with Myelomeningocele Spina Bifida so I don't know much more about...
My tee Daughter went for years with out a UTI and then they did some testing on her and after that every month we were having and infection, not where she...
My name is Deanna. I am 20 years old and I have Spina Bifida. Fortunately I have a very mild case. I am able to walk and can do everything on my own. I have...
Hi Deanna. Welcome to the group! My name is Bobbie, and I have a daughter who is almost 15 with SB, in 9th grade. She has a very low lesion, and also walks...
Does anyone have any info. regarding assited living care, on Long Island or lower New York State, for adults with SB. I have a 47 yr old sister who is...
Hi, I was born with S.B. I need 2 new leg braces which I cant afford and my insurance doesnt cover it, I cant go on medicaid because my husband makes above the...
Antioxidants Appear to Protect Against Type 2 Diabetes Jukka Montonen of the National Public Health Institute in Helsinki, Finland, and team, tracked dietary...
You can try contacting the President of the SB association in Long Island (Nassau County). Her name is Laura Petranto, and her e-mail address is below. You...
Hello Matt Muckleroy! Fruit and Cereal Fiber May Reduce Cardiovascular Disease Risk In a recently published study, researchers from Harvard and the University...
Hi everyone, I have a question. I am 31yrs old and I have SB myelomeningeocele, I wear leg braces, I have a shunt for hydrocephalus, I catherize myself every...
Hi, my name is Misty Williams i'm 19rs old from Bakersfield Cali. I just got married November 1,03. I have spina Bifida, and since i was born i've had 19...
Hello Misty, sorry to hear you have to have another surgry , but untethering your cord will not stop you from doing what you are doing with your life and it is...
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