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spinabifidacentral · Spina Bifida Central -A Place To Find Support And Share Experiences
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Messages 7780 - 7809 of 8015   Newest  |  < Newer  |  Older >  |  Oldest
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7809
We are fortunate enough that we are able to receive  a large supply of caths every month.   We have an overflow right now of 8Fr and Insertion kits. I MEAN...
Brittany Gibson
bgibson81107
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Nov 13, 2009
2:38 pm
7808
but she wasn't a VA   she only has medical and i am out here in calif   ________________________________ From: Sara Schneider...
David Alvarado
davidjohn831ca
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Nov 12, 2009
9:09 pm
7807
she had but theres alot of  red tape in all that and i can't even reach the  SBA   offices  in calif  ________________________________ From: mike s...
David Alvarado
davidjohn831ca
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Nov 12, 2009
9:07 pm
7806
My girl friend only has medical  and they wont help  her ________________________________ From: Tami Shuck <tami_leonard69@...> To:...
David Alvarado
davidjohn831ca
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Nov 12, 2009
9:06 pm
7805
I have needed to use crutches from time to time and backpacks have worked well for me. The backpack just needs to have a strap that comes around the lower...
hcmerrell@...
hcmerrell
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Nov 12, 2009
8:35 pm
7804
Medicaid AND VA??? Does he have SBHC thru the VA? ________________________________ From: Tami Shuck <tami_leonard69@...> To:...
Sara Schneider
coffteawoman...
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Nov 12, 2009
3:34 pm
7803
good luck with your adoption and god bless you for standing up about the condition of sb....i have it and im tired of everyone calling it a disease like you...
mike s
handsome_lov...
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Nov 12, 2009
1:11 pm
7802
may god continue to bless you and your beautifull family ... From: counselorwillingham@... <counselorwillingham@...> Subject: Re: [Spina Bifida...
mike s
handsome_lov...
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Nov 12, 2009
1:08 pm
7801
david   has your gf been to a doctor about her spina bifida? if she has he or she can write out a script for a wheelchair based upon her needs ... From: David...
mike s
handsome_lov...
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Nov 12, 2009
11:33 am
7800
no, I'am not sure, is she on medicade, or medicare? My son is on medicade and VA so I'am gona try there. The only things I can suggest is to call them and ask...
Tami Shuck
tami_leonard69
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Nov 12, 2009
11:28 am
7799
Looking for insight for those with children who use crutches and also need a back pack of sorts. Up to now Brenden's been using a rolling back pack - no ...
Vital Card
klawliss
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Nov 12, 2009
9:54 am
7798
So very well stated Ms. Kathy! Sent via BlackBerry by AT&T ... From: "barnesfoster" <barnesfoster@...> Date: Wed, 11 Nov 2009 21:28:37 To:...
counselorwillingham@...
counselorwil...
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Nov 12, 2009
2:41 am
7797
my name is David my girlfriend has spina bifida and  I am trying   to get her an electric  wheel chair and i have  not  had any luck on my  side, do u...
David Alvarado
davidjohn831ca
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Nov 12, 2009
12:54 am
7796
I am a theraputic foster care provider and I have cared for many children with a variety of congenital birth defects including the baby I now have with SB that...
barnesfoster
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Nov 11, 2009
9:34 pm
7795
it might be embaressing as you would say,but it helps out alot.....ive had mine over 30 yrs and ive had very minimal trouble with it ... From: Sara Schneider...
mike s
handsome_lov...
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Nov 11, 2009
5:59 pm
7794
For a lot of people bags are very embarrassing. ________________________________ From: mike s <handsome_loving_kind@...> To:...
Sara Schneider
coffteawoman...
Offline Send Email
Nov 11, 2009
3:36 pm
7793
The website link for AMBUCS previously posted leads to a very different site than the poster intended. Try ambucs.com instead!...
adamdad34
Offline
Nov 11, 2009
1:53 pm
7792
That was very sweet! I am glad Charlie is walking! Angel and Brianah (6yrs  L4 L5) [Non-text portions of this message have been removed]...
Angel Moore
amoore3596
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Nov 11, 2009
12:39 am
7791
Feel free to respond back to this site so others can read and benefit from opinions as well. Thanks Brent...
brent196847
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Nov 11, 2009
12:36 am
7790
Hello All, Been awhile since I have been on the site. Please copy and paste this link below into your browser and read this article. I think you will all...
brent196847
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Nov 11, 2009
12:32 am
7789
Urostomies are old. Doctors don't like doing them on young kids now. So, the mitrofanoff is the best thing these days. Really simple to use that doesn't...
LightningGrl2121@...
lightningpri...
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Nov 10, 2009
10:22 pm
7788
why not just talk to your doctor about getting an urostomy  that way the urine would go into a bag and it would need emptying every couple of hrs depending on...
mike s
handsome_lov...
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Nov 10, 2009
9:32 pm
7787
You mean a mitrofanoff? That would be where you cath through your belly button. I love mine. I had it separate from the bladder augmentation, but it is better...
LightningGrl2121@...
lightningpri...
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Nov 10, 2009
9:01 pm
7786
Just make sure they explain it to you what they are going to do and what the plan is.  We didn't get that and I had a weird feeling about.  Turns out my gut...
Wendy W.
wendyw7
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Nov 10, 2009
8:14 pm
7785
Hi all, long time reader, new poster. Recently my 4 1/2 yr old son got botox shots in his bladder to try to lower the pressure. After 6 weeks, we went back...
bobbyrdsmom
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Nov 10, 2009
5:20 pm
7784
Check to see if you have an AMBUCKS chapter in your state. They are a wonderful non profit organization that supplies these bikes to children. My son is on...
Heather kane
heatherkane1
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Nov 10, 2009
4:13 pm
7783
I am looking for a hand trike can anyone guide me in the right direction! It is for my 3 year old son! [Non-text portions of this message have been removed]...
christina FULTON
cmpopafulton
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Nov 10, 2009
3:54 pm
7782
first off it was a mistake. She is reaching out to us to assist in education we should be welcoming and educating not getting angry and being rude. To answer...
christina FULTON
cmpopafulton
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Nov 10, 2009
3:53 pm
7781
Yes it has!  Judge not less yee be judged!  May have been a mistake or misinformation but in  my opinion, it was obviously well intended!  Why make a...
Stormie Willingham
counselorwil...
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Nov 10, 2009
3:51 pm
7780
Boy, this sure has created a big mess, hasn't it. Sheri, mom to Dillan, T-10...
Sheri
sheri_moss0925
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Nov 10, 2009
2:53 pm
Messages 7780 - 7809 of 8015   Newest  |  < Newer  |  Older >  |  Oldest
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