david  has your gf been to a doctor about her spina bifida? if she has he or she can write out a script for a wheelchair based upon her needs ... From: David...
no, I'am not sure, is she on medicade, or medicare? My son is on medicade and VA so I'am gona try there. The only things I can suggest is to call them and ask...
Looking for insight for those with children who use crutches and also need a back pack of sorts. Up to now Brenden's been using a rolling back pack - no ...
I am a theraputic foster care provider and I have cared for many children with a variety of congenital birth defects including the baby I now have with SB that...
it might be embaressing as you would say,but it helps out alot.....ive had mine over 30 yrs and ive had very minimal trouble with it ... From: Sara Schneider...
Hello All, Been awhile since I have been on the site. Please copy and paste this link below into your browser and read this article. I think you will all...
Urostomies are old. Doctors don't like doing them on young kids now. So, the mitrofanoff is the best thing these days. Really simple to use that doesn't...
why not just talk to your doctor about getting an urostomy that way the urine would go into a bag and it would need emptying every couple of hrs depending on...
You mean a mitrofanoff? That would be where you cath through your belly button. I love mine. I had it separate from the bladder augmentation, but it is better...
Just make sure they explain it to you what they are going to do and what the plan is. We didn't get that and I had a weird feeling about. Turns out my gut...
Hi all, long time reader, new poster. Recently my 4 1/2 yr old son got botox shots in his bladder to try to lower the pressure. After 6 weeks, we went back...
Check to see if you have an AMBUCKS chapter in your state. They are a wonderful non profit organization that supplies these bikes to children. My son is on...
I am looking for a hand trike can anyone guide me in the right direction! It is for my 3 year old son! [Non-text portions of this message have been removed]...
first off it was a mistake. She is reaching out to us to assist in education we should be welcoming and educating not getting angry and being rude. To answer...
Yes it has! Judge not less yee be judged! May have been a mistake or misinformation but in my opinion, it was obviously well intended! Why make a...
I know a lot of people that say it that way. Doesn't mean they should be treated like they are bad and stupid. Summer In a message dated 11/9/2009 6:18:57 P.M....
Sara, please don't be hateful. If you are a young student & have had good health and are just learning you may not know. This poor person came here for help...
I've yet to meet a person (especially one w/ SB in the family!) that thinks any birth defect is a disease. It might be different if she knew no one w/ SB, but...
It doesn't matter. She is a college student. Give the girl a break. She is trying to educate herself. You don't have to be rude about it. Summer In a message...
Come on Guys, give the student a break! I'm sure she didn't mean any harm by calling the Spina Bifida "Defect", a Disease. A lot of people are ignorant as to...
Sara, You don't have to be rude about it. All you can do is educate people about it. Some people do not understand what it is. So please do not act like this...
Oh my gosh... a DISEASE??? Reading your email literally made me physically ill... Just check out www.sbaa.org. From: spinabifidacentral@ yahoogroups. com ...
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