We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini

Upstate NY









________________________________

From: Naomi <tinymamabear@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 8:34:10 AM

Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this











We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.















[Non-text portions of this message have been removed]

It is wonderful that you have been able to find separate private docs who are

knowledgeable in treating the many and diverse issues that can accompany SB!  I

have to drive an hour to either of the SB clinics available and I preferred ones

approach better than the other!  But in my area of NC I have found that even the

local pediatricians know little about therapeutic care for SB and have no

knowledge of recent studies!  I sometimes wish I lived in an area where

physicians had knowledge of this condition!  My ped doc here told me I know more

than she does and only sees my son for well checks!

Sent via BlackBerry by AT&T



-----Original Message-----

From: Catherine Recchini <csprncs77@...>



Date: Sat, 11 Jul 2009 06:32:53

To: <spinabifidacentral@yahoogroups.com>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this





that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini

Upstate NY









________________________________

From: Naomi <tinymamabear@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 8:34:10 AM

Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this











We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.















[Non-text portions of this message have been removed]









[Non-text portions of this message have been removed]

no that wasnt me i dont have a very good "regular" doctor at all in fact he has

a tendency to continusally misdiagnose me with things that are normal for

someone with sb and my level we finally agreed let the sb clinic care for sb

issues and if i have the flu or a minor wound ill go to him because it did get

very ridiculous. the only thing i didnt mess with and this is because i've been

very lucky that i dont have the issues other's have is my ob/gyn he knows every

aspect of sb right down to the shunt and its issues, but thats also something i

do not deal with as mine has been non-functioning since about age 9.



Catherine Recchini

Upstate NY









________________________________

From: "counselorwillingham@..." <counselorwillingham@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 9:39:38 AM

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this











It is wonderful that you have been able to find separate private docs who are

knowledgeable in treating the many and diverse issues that can accompany SB! I

have to drive an hour to either of the SB clinics available and I preferred ones

approach better than the other! But in my area of NC I have found that even the

local pediatricians know little about therapeutic care for SB and have no

knowledge of recent studies! I sometimes wish I lived in an area where

physicians had knowledge of this condition! My ped doc here told me I know more

than she does and only sees my son for well checks!

Sent via BlackBerry by AT&T



-----Original Message-----

From: Catherine Recchini <csprncs77@yahoo. com>



Date: Sat, 11 Jul 2009 06:32:53

To: <spinabifidacentral@ yahoogroups. com>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this





that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini

Upstate NY









____________ _________ _________ __

From: Naomi <tinymamabear@ yahoo.com>

To: spinabifidacentral@ yahoogroups. com

Sent: Saturday, July 11, 2009 8:34:10 AM

Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this











We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.















[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

I praise my Ob-Gyn he took it upon himself when SB dignoses(sp) was told on

January 18, 2004 he made the appitmoint in Great Falls with Dr. Thomas Key and

got it confrimed and everything All I had to do was show up at the Keys office

the next day, mind you I was 18 weeks pregnant with my 2nd child and I litteraly

had not even 24 hours to decied what I was gonna do. But it was really Benefis

Hosptial in Great Falls that got us hooked up with Dr. Anthony Dorr for uro and

Keys got us hooked up with Dr. Dale Schaffer for nuero. and they are all on top

of ALL the new research out there, and also the shunt that Dr. Schaffer placed

in my daughters head is one of his own patned shunt systems.









________________________________

From: Catherine Recchini <csprncs77@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 7:48:42 AM

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this











no that wasnt me i dont have a very good "regular" doctor at all in fact he has

a tendency to continusally misdiagnose me with things that are normal for

someone with sb and my level we finally agreed let the sb clinic care for sb

issues and if i have the flu or a minor wound ill go to him because it did get

very ridiculous. the only thing i didnt mess with and this is because i've been

very lucky that i dont have the issues other's have is my ob/gyn he knows every

aspect of sb right down to the shunt and its issues, but thats also something i

do not deal with as mine has been non-functioning since about age 9.



Catherine Recchini

Upstate NY



____________ _________ _________ __

From: "counselorwillingham @yahoo.com" <counselorwillingham @yahoo.com>

To: spinabifidacentral@ yahoogroups. com

Sent: Saturday, July 11, 2009 9:39:38 AM

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this



It is wonderful that you have been able to find separate private docs who are

knowledgeable in treating the many and diverse issues that can accompany SB! I

have to drive an hour to either of the SB clinics available and I preferred ones

approach better than the other! But in my area of NC I have found that even the

local pediatricians know little about therapeutic care for SB and have no

knowledge of recent studies! I sometimes wish I lived in an area where

physicians had knowledge of this condition! My ped doc here told me I know more

than she does and only sees my son for well checks!

Sent via BlackBerry by AT&T



-----Original Message-----

From: Catherine Recchini <csprncs77@yahoo. com>



Date: Sat, 11 Jul 2009 06:32:53

To: <spinabifidacentral @ yahoogroups. com>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this



that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini

Upstate NY



____________ _________ _________ __

From: Naomi <tinymamabear@ yahoo.com>

To: spinabifidacentral@ yahoogroups. com

Sent: Saturday, July 11, 2009 8:34:10 AM

Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this



We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

I dont have a ped. they are rare here, the family doctor sees both my kids for

vaccines and such, but her nuro is in Great Falls MT 1 hour and 45 mintues away

depending on MT weather, her uro is 2 hours away in Missoula MT depending on MT

weather again, and ortho was 6+ hours away in Spokane WA depending on weather in

MT ID and WA but depending on what happens to the one in Spokane that drive

could turn into a 9+ hour drive to Portland OR depending on MT, ID, and OR

weather. I had to have my daughter in Great Falls because Helena cant do SB I

cannot even take my daughter to the ER for example a broken arm because they no

nothing of SB. I wont even take my non-sb child to the hosptial here in Helena I

will drive to Missoula or Great Falls for the Better care.









________________________________

From: "counselorwillingham@..." <counselorwillingham@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 7:39:38 AM

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this











It is wonderful that you have been able to find separate private docs who are

knowledgeable in treating the many and diverse issues that can accompany SB! I

have to drive an hour to either of the SB clinics available and I preferred ones

approach better than the other! But in my area of NC I have found that even the

local pediatricians know little about therapeutic care for SB and have no

knowledge of recent studies! I sometimes wish I lived in an area where

physicians had knowledge of this condition! My ped doc here told me I know more

than she does and only sees my son for well checks!

Sent via BlackBerry by AT&T



-----Original Message-----

From: Catherine Recchini <csprncs77@yahoo. com>



Date: Sat, 11 Jul 2009 06:32:53

To: <spinabifidacentral@ yahoogroups. com>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this





that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini

Upstate NY









____________ _________ _________ __

From: Naomi <tinymamabear@ yahoo.com>

To: spinabifidacentral@ yahoogroups. com

Sent: Saturday, July 11, 2009 8:34:10 AM

Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this











We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.















[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

Wow! That is like driving somewhere on vacation...I wonder why some of the Dr.'s

havent tried to start a clinic somewhere close...are there not that many people

or children with SB in that area?



--- On Sat, 7/11/09, Naomi TeStroote <tinymamabear@...> wrote:



From: Naomi TeStroote <tinymamabear@...>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this

To: spinabifidacentral@yahoogroups.com

Date: Saturday, July 11, 2009, 11:47 AM



































       I dont have a ped. they are rare here, the family doctor sees both my kids

for vaccines and such, but her nuro is in Great Falls MT 1 hour and 45 mintues

away depending on MT weather, her uro is 2 hours away in Missoula MT depending

on MT weather again, and ortho was 6+ hours away in Spokane WA depending on

weather in MT ID and WA but depending on what happens to the one in Spokane that

drive could turn into a 9+ hour drive to Portland OR depending on MT, ID, and OR

weather. I had to have my daughter in Great Falls because Helena cant do SB I

cannot even take my daughter to the ER for example a broken arm because they no

nothing of SB. I wont even take my non-sb child to the hosptial here in Helena I

will drive to Missoula or Great Falls for the Better care.







____________ _________ _________ __



From: "counselorwillingham @yahoo.com" <counselorwillingham @yahoo.com>



To: spinabifidacentral@ yahoogroups. com



Sent: Saturday, July 11, 2009 7:39:38 AM



Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this







It is wonderful that you have been able to find separate private docs who are

knowledgeable in treating the many and diverse issues that can accompany SB! I

have to drive an hour to either of the SB clinics available and I preferred ones

approach better than the other! But in my area of NC I have found that even the

local pediatricians know little about therapeutic care for SB and have no

knowledge of recent studies! I sometimes wish I lived in an area where

physicians had knowledge of this condition! My ped doc here told me I know more

than she does and only sees my son for well checks!



Sent via BlackBerry by AT&T







-----Original Message-----



From: Catherine Recchini <csprncs77@yahoo. com>







Date: Sat, 11 Jul 2009 06:32:53



To: <spinabifidacentral @ yahoogroups. com>



Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this







that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.







Catherine Recchini



Upstate NY







____________ _________ _________ __



From: Naomi <tinymamabear@ yahoo.com>



To: spinabifidacentral@ yahoogroups. com



Sent: Saturday, July 11, 2009 8:34:10 AM



Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this







We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.







[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]































































[Non-text portions of this message have been removed]

Not so much that there arnt SB people as much as with how rual the state is they

try toget one started and then they lose funding to cancer and things like that.









________________________________

From: Angel Moore <amoore3596@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 10:18:35 AM

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this











Wow! That is like driving somewhere on vacation...I wonder why some of the Dr.'s

havent tried to start a clinic somewhere close...are there not that many people

or children with SB in that area?



--- On Sat, 7/11/09, Naomi TeStroote <tinymamabear@ yahoo.com> wrote:



From: Naomi TeStroote <tinymamabear@ yahoo.com>

Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this

To: spinabifidacentral@ yahoogroups. com

Date: Saturday, July 11, 2009, 11:47 AM



I dont have a ped. they are rare here, the family doctor sees both my kids for

vaccines and such, but her nuro is in Great Falls MT 1 hour and 45 mintues away

depending on MT weather, her uro is 2 hours away in Missoula MT depending on MT

weather again, and ortho was 6+ hours away in Spokane WA depending on weather in

MT ID and WA but depending on what happens to the one in Spokane that drive

could turn into a 9+ hour drive to Portland OR depending on MT, ID, and OR

weather. I had to have my daughter in Great Falls because Helena cant do SB I

cannot even take my daughter to the ER for example a broken arm because they no

nothing of SB. I wont even take my non-sb child to the hosptial here in Helena I

will drive to Missoula or Great Falls for the Better care.



____________ _________ _________ __



From: "counselorwillingha m @yahoo.com" <counselorwillingha m @yahoo.com>



To: spinabifidacentral@ yahoogroups. com



Sent: Saturday, July 11, 2009 7:39:38 AM



Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this



It is wonderful that you have been able to find separate private docs who are

knowledgeable in treating the many and diverse issues that can accompany SB! I

have to drive an hour to either of the SB clinics available and I preferred ones

approach better than the other! But in my area of NC I have found that even the

local pediatricians know little about therapeutic care for SB and have no

knowledge of recent studies! I sometimes wish I lived in an area where

physicians had knowledge of this condition! My ped doc here told me I know more

than she does and only sees my son for well checks!



Sent via BlackBerry by AT&T



-----Original Message-----



From: Catherine Recchini <csprncs77@yahoo. com>



Date: Sat, 11 Jul 2009 06:32:53



To: <spinabifidacentral @ yahoogroups. com>



Subject: Re: [Spina Bifida Central] Ok, I am soooo tired of hearing this



that is OK though you can often find good medical care without going to an sb

clinic and that's great if you do but my point was and is , is that going to one

is sooo much different than seeing seperate doctor's that if you dont' go to one

or never have been to one your not aware of how differently they handle thing's

and the info that they do give out and go by so going by what your physician's

are telling you to do is not a reason to tell someone else that does go to an sb

clinic that what they repeat is wrong that's all i was saying.



Catherine Recchini



Upstate NY



____________ _________ _________ __



From: Naomi <tinymamabear@ yahoo.com>



To: spinabifidacentral@ yahoogroups. com



Sent: Saturday, July 11, 2009 8:34:10 AM



Subject: [Spina Bifida Central] Ok, I am soooo tired of hearing this



We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]























[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

How far do yall have to travel? Some states have only 1 or 2 clinics...we are

blessed that we only have to travel for 45 min to an hour to get to our SB

clinic in Atlanta...depends on the traffic here...Angel and Brianah





--- In spinabifidacentral@yahoogroups.com, "Naomi" <tinymamabear@...> wrote:

>

> We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

>

________________________________

From: Angela <amoore3596@...>

To: spinabifidacentral@yahoogroups.com

Sent: Saturday, July 11, 2009 7:37:11 AM

Subject: [Spina Bifida Central] Re: Ok, I am soooo tired of hearing this











How far do yall have to travel? Some states have only 1 or 2 clinics...we are

blessed that we only have to travel for 45 min to an hour to get to our SB

clinic in Atlanta...depends on the traffic here...Angel and Brianah



--- In spinabifidacentral@ yahoogroups. com, "Naomi" <tinymamabear@ ...> wrote:

>

> We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

>















[Non-text portions of this message have been removed]

Angela,

Did we meet at the 2008 SB Christmas party?  I met a family with a daughter in a

chair there and i can't remember their name.



Sheri, mom to Dillan, T-10,





--- In spinabifidacentral@yahoogroups.com, "Angela" <amoore3596@...> wrote:

>

> How far do yall have to travel? Some states have only 1 or 2 clinics...we are

blessed that we only have to travel for 45 min to an hour to get to our SB

clinic in Atlanta...depends on the traffic here...Angel and Brianah

>

>

> --- In spinabifidacentral@yahoogroups.com, "Naomi" <tinymamabear@> wrote:

> >

> > We DO NOT have an SB clinic in my state so we have to travel to get to some

of my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

> >

>

I got offered a great job in montana. But after looking at trying to see where

to transfer my daughters records to there was no place in mt. I would have had

to goto the far east side of North Dakota to get to a clinic. I too also thought

every state had them till I researched it and found out they didn't have one.

Once I found out it was going to be like a 15 hr drive to get to clinic I

decided to stay in indiana. and then of course that was only depending on the

weather.





--- In spinabifidacentral@yahoogroups.com, "Sheri" <sheri_moss0925@...> wrote:

>

> Angela,

> Did we meet at the 2008 SB Christmas party?  I met a family with a daughter in

a chair there and i can't remember their name.

>

> Sheri, mom to Dillan, T-10,

>

>

> --- In spinabifidacentral@yahoogroups.com, "Angela" <amoore3596@> wrote:

> >

> > How far do yall have to travel? Some states have only 1 or 2 clinics...we

are blessed that we only have to travel for 45 min to an hour to get to our SB

clinic in Atlanta...depends on the traffic here...Angel and Brianah

> >

> >

> > --- In spinabifidacentral@yahoogroups.com, "Naomi" <tinymamabear@> wrote:

> > >

> > > We DO NOT have an SB clinic in my state so we have to travel to get to

some of my daughters doctors. I get asked all the time why dont I just go to a

Sb clinic, and when I say we dont have one the east coast mantilty of since we

have it EVERYONE has it seems to kick in and they dont belive me, I am soo sick

of haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

> > >

> >

>

their's a formal list somewhere on the net that lists them by state not sure

where I found it but that's how i found mine when i went from pediatrics to

adult.



Catherine Recchini

Upstate NY









________________________________

From: rr060603vr <rr060603vr@...>

To: spinabifidacentral@yahoogroups.com

Sent: Sunday, July 12, 2009 10:41:45 AM

Subject: [Spina Bifida Central] Re: Ok, I am soooo tired of hearing this











I got offered a great job in montana. But after looking at trying to see where

to transfer my daughters records to there was no place in mt. I would have had

to goto the far east side of North Dakota to get to a clinic. I too also thought

every state had them till I researched it and found out they didn't have one.

Once I found out it was going to be like a 15 hr drive to get to clinic I

decided to stay in indiana. and then of course that was only depending on the

weather.



--- In spinabifidacentral@ yahoogroups. com, "Sheri" <sheri_moss0925@ ...>

wrote:

>

> Angela,

> Did we meet at the 2008 SB Christmas party? I met a family with a daughter in

a chair there and i can't remember their name.

>

> Sheri, mom to Dillan, T-10,

>

>

> --- In spinabifidacentral@ yahoogroups. com, "Angela" <amoore3596@ > wrote:

> >

> > How far do yall have to travel? Some states have only 1 or 2 clinics...we

are blessed that we only have to travel for 45 min to an hour to get to our SB

clinic in Atlanta...depends on the traffic here...Angel and Brianah

> >

> >

> > --- In spinabifidacentral@ yahoogroups. com, "Naomi" <tinymamabear@ > wrote:

> > >

> > > We DO NOT have an SB clinic in my state so we have to travel to get to

some of my daughters doctors. I get asked all the time why dont I just go to a

Sb clinic, and when I say we dont have one the east coast mantilty of since we

have it EVERYONE has it seems to kick in and they dont belive me, I am soo sick

of haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

> > >

> >

>















[Non-text portions of this message have been removed]

Naomi,



We have a SB Clinic an hour away from us and we opt to have Emmy see all of her

specialists individually in their offices.  We chose to do things this way from

the beginning.  It is a personal choice and has no reflection on you as the

parent.  (Even though in your situation you can't opt to do clinic).







--- In spinabifidacentral@yahoogroups.com, "Naomi" <tinymamabear@...> wrote:

>

> We DO NOT have an SB clinic in my state so we have to travel to get to some of

my daughters doctors. I get asked all the time why dont I just go to a Sb

clinic, and when I say we dont have one the east coast mantilty of since we have

it EVERYONE has it seems to kick in and they dont belive me, I am soo sick of

haveing to explain it to people wheather in here (rarely) or any of the other

groups and boards I am a member of.

>