Kaleb had it done and it has been wonderful. We did have a setback and had to have it redone but it wasn't major. He no longer has any bowel movements at...
I would like to see pictures so I can have a sense of what to expect. Does Kaleb has sensation? My son has none at all. This whole thing for is frustrating....
He can play whatever he wants. The catheter would stay in for 4-6 weeks depending on how it heals, but after that it shouldn't be a problem. I have one and...
Hello! I have a 7 month old son who has been in AFOs for about two months now. I have a question about all the differnt AFO socks out there. Is it important...
Hi Todd, Is this the same Liberator as on the commercials on TV? How many hoops do you have to jump through to get hooked up with them and get catheters?...
We have ordered them...we got a pair of the pink ones and a pair of the purple ones...My daughter sweats so much all of her socks are soaked when we take her...
Hi, Daniel is 8 and has several pair of blue and white AFOsocks. We like them. Even when they are not pulled up over his AFOs, they stay up where they are...
We have always used regular crew length socks with no skin problems. Out orthotist told us that the special socks were not necessary unless we started to have...
No he doesn't know when he needs to go or when is he is going. The MACE is good for him because it's all set up and we don't have to worry about him having a...
Hi Amber! Yes, it is the Liberator that you see on TV. All you have to do is call them and give them your info. They get a script from your doctor and take...
Have they said when he will be back to normal? Thank you for letting me see the pics. That really helps me alot. I just hope that this works for him. Does...
Hi thanks. I think I will try it tired of getting infections. It is natural and I think that is the best if things can be dealt with that way. take care...
Jackie
jpentland1@...
Jul 3, 2009 5:45 pm
7067
White vinegar?? How much do u put in the bath water?? Sent from my iPhone On Jul 3, 2009, at 12:44 PM, "Jackie" <jpentland1@...> wrote: Hi thanks. I...
Back to normal would be going back to being backed up and going whenever his system is full enough to push some poop out. This is his normal now and it's a lot...
My nine year old daughter who has spina bifida started her period last night. She is to young to have to deal with this right now. A year ago she had the...
Hi I wear more like an attens but it is not full sides. Do you change it even if it is not damp or wet? If it is dry what do you do? thanks jackie ... From:...
Jackie
jpentland1@...
Jul 6, 2009 3:18 pm
7071
Hi is this the lemon juice that is in the bottles. Does this just mean that you add the 4 cups of water. Would you have to add sugar? thanks jackie ... From:...
Jackie
jpentland1@...
Jul 7, 2009 1:54 am
7072
Greetings all. We have been informed by the doctor our baby, at 18 weeks pregnant, has SB and Hydrocephalus. We are here to gain as much info and insight to...
Welcome to the group, I as well found out at 18 weeks that my daughter has SB, she is now 5 years old and walking with KAFO's yes she has a shunt for her...
they never give you any good news when you first find out that your baby has SB and hydrocephelus. i was also given the grim news but i was determined to give...
We found out 11 days before we had our daughter, Brianah...almost 6...that she has SB and Hydrocephalus. They said that the only thing that we could have done...
To tcburns35: I woudl agree, nine seems to be young.? That being said, when I started my period (age 13), I really didn't see it as an issue.? I was already...
First of Congrats on your pregnancy. Secondly I highly highly recomend you look for a chapter of Spina Bifida Association in you area! The national website is...
Hi! I would encourage you to please look at my website and our family blog. The lifestyle accelerator website will give you some general info about spina...
Welcome! I found out at 20 weeks and my husband and I were in shock for a few months. They gave us a lot of scary information but something I learned...
All you can do like any mother is tell her the truth. For kids with sb 9 isn't that young. I was either 8 or 9 when I started. Don't worry too much. She will...
I responded to a different topic with this information but I feel like this topic is so important it warrants one of its own, especially since new parents are...
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