Hi Nancy, yes the doctor said to cath her in the morning, afternoon, and before going to bed. I used to cath her every 4 hours, day and night for a while after...
I have a question. has anyone ever had a band place on your bladder to control wetting. if so I would like to hear from you. Jackie Pender Haven a Bless...
Hi I had a shunt infection after my last shunt revision last april. It resulted in five months of being in the hospital because of the infection of course....
Jackie
jpentland1@...
Jun 1, 2009 11:41 pm
6825
my 15 month old daughter has spina bifida(l4-l5),cath 3xday,shunt. she recently got a g-tube put in. The last couple of days when we sit her down in her...
My daughter is almost 6...L4L5 and hydro/shunt ACM...Her feet have turned a purplish color...children with Spina Bifida have poorer circulation in their lower...
Hi Vinesa! My legs and feet have been purple and cold while in the sitting position for years. It's a lack of blood flow. My doctors don't worry about it at...
Hi when you say change your under garment do you mean a pad that you are wearing? I am just trying to figure out if that might work for me. I am just getting...
Jackie
jpentland1@...
Jun 5, 2009 12:51 pm
6829
would it work for adults or just children? take care jackie ... From: usolyfan2 To: spinabifidacentral@yahoogroups.com Sent: Sunday, May 31, 2009 10:49 AM ...
Jackie
jpentland1@...
Jun 5, 2009 6:35 pm
6830
Yes, it works for adults too. The recommended dose for an adult is one teaspoon....
Reminder from: spinabifidacentral Yahoo! Group http://groups.yahoo.com/group/spinabifidacentral/cal Christie's bday Monday June 8, 2009 All Day (This event...
Hi All, I don't know if anyone can help me cause I am doing all that I can think of that there is to do. I get a HUGE amount of infections. I have had at least...
Are you taking an antibiotic everynight to prevent the UTI's? My daughter is on Macrodantin and Keflex every other night...She was just on the Macrodantin...
I hope you get to feeling better...and find something that works....also when my daughter was younger she went to a chiropractor and that also helped with the...
Hi Jackie, I actually wear an attends brief. I have tried wearing a pad with underwear and had some bowel accidents, thankfully all at home and so I've just...
Hi Tanya, I used to get a ton of infections too. After my urologist started treating my kidney reflux and put me on a different prophylactic they have become...
My son is 17 months old and has Lypomengicelle (Spina Bifida) He he totally incontinent and presently wearing AFO's. Without the braces his feet turn...
From me. I have AFO's and fore arm crutches but am not in a wheel chair. Everyone is different, but hopefully that gives you some hope :) ... -- Erin Solange ...
Dear Brent, I wish I could give a 100% guarantee, but I can tell you about Leith. He just turned 12. When he was 6 months old, we put him on our bed and...
Hi Brent, I am 45 and have SB (Myelomeningeocele) at L5-S1. The extent of my defects were not known at birth, other than that I had a sac on my lower back...
Every child is different My 5 yer old has myelomengicle L4-L5 she is shunted, and she is cathed every 3hours she also takes 2cc's of macrodatin once a day and...
My daughter is almost 6 and L4 L5 SB...she walks with crutches and Afo's with a twister cable on her left leg...she loves to walk! We are thinking about...
I had braces at that age and only recently have needed a wheelchair (I'm 40 now). So I can personally offer hope for a good 35 years without wheels (more if...
Reminder from: spinabifidacentral Yahoo! Group http://groups.yahoo.com/group/spinabifidacentral/cal Christie's bday Monday June 8, 2009 All Day (This event...
spinabifidacentral@ya...
Jun 8, 2009 2:57 am
6846
I appreciate all the responses I have received. Thanks again for taking the time to do so. I am just going to list some questions and concerns and would be...
Hi Brent, I'm sure you will get loads of responses to these questions, so be ready :) But here is my two cents worth (now that I look over what I just wrote, I...
Hi! My 5yo daughter has SB and we are adopting a little girl (3yo) with CP/SB as well. Lauren walked on outside and tops of her feet, even while in braces. Our...
Hi Brent. I'm sorry to be brief, but I have lots of small children running around... I don't know if you have checked out the website yet or not, but please...
Dear Annie, You give your website's link in all your posts here,but I cannot access them.My browser says- error 406-not acceptable. A few days back when I was...
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