I am a foster mom to a beautiful 6 month old with spina bifida. I am using Miralax to help with her constipation. I was wondering if any one has had success...
Congrats on caring for such a special baby.... They are so sweet. My daughter is 5mths old with SB. She also takes Miralax. However, for her constipation she...
Hi Brent: I'm in Northern CA (Fremont) and I don't know much about SB care in southern CA. I can tell you that there are good SB clinics in my area at UCSF...
Hi Eladio: I noticed in one of your notes that you live in Pleasanton -- I live in Fremont! I have SB myself, and I'm Mom to a 5 year old son who is not...
I'm glad to hear about your study. I am a 44 yr. old mom with SB myself. I am not wheelchair bound, but I still remember feeling self- conscoius in my...
Hi, Welcome to the group! Yes,this is normal for his age. The more socially connected kids become, the more they recognize their limitations. I've been there...
hi heather, yes i liva in pleasanton and my son cristofer has 8 months old,hi has sb, thanks ________________________________ Frosm: Heather Merrell...
congrats on your baby! My son is 3 and I am not a huge fan of medication so I do the best I can to not use meds! I began using very high fiber foods which...
I am 20 and I have spina bifida. I tried miralax a number of years ago and personally for me it caused an awful lot of cramping and didn't even really help the...
Has anyone seen these new kid drink straws? they have been advertised specifically for children, but the thing that I was really excited about is that they...
hi, we used miralax for several years but it mader her go.... all the time so now we use little tummys senna laxative and a liquid glycerine(babylax)...
hi, we are new to the group and need some guidance. we are looking at adopting a 2 year old girl from china who has some form of Spina Bifida. She is post-op...
Hi! We live in Garner/Clayton area! We tried a couple of different orthopaedic surgeons but we found Dr Campoin at UNC about 2 years ago and will stay with him...
We use Campion as well ...he is great I tried Duke but prefer UNC ten to one Sent via BlackBerry by AT&T ... From: Lydia Wells <lydsluvsrich99@...> Date:...
My daughter Gabby is 3 and I and her primary doctor believe that her bowels are on the opposite side that they are supposed to be on. Is this common in a...
I have a question for anybody who has knowledge of stryder. My son is 5 months old and has had maybe two episodes at night of a long gasping, high pitched...
HI KRISTIN BREINER, MY SON IS 7 MONTS TODAY, AND HES BREATHE IS NOISILY ALSO, THIS FRIDAY WE HAVE AN APOINMENT, WHIT THE OTORINO, LAS TIME HE TEEL US IS...
Has anyone here with spina bifida had seizures or has your child with spina bifida had seizures? My 13 year old daughter had one yesterday and her doctors...
Does your son have a shunt? My daughter started stridoring at two weeks old, as soon as our neurosurgeon heard her he said she needed a shunt. Her syrinx...
The only time I had a grand mal was when my shunt malfunctioned. I had 3 in two days. I would just keep an eye out. Is she having other symptoms? Summer In a...
A few years ago, I had those mini mal seizures that NO ONE could figure out for months then I started getting headaches and then a shunt malfunction surgery...
Summer-I thought maybe she was having some symptoms because she didn't want anything to eat the night before the seizure and complained of a bad headache.They...
Denise-What is a mini mal seizure? Yeah the last time my daugther had a seizure her shunt looked fine but four months later they found a shunt problem and had...
... This seizure r any seizure should definitely be ck'd out especially with having a shunt!!one of the first things i was told to look out for when my son's...
Kristen, A mini Mal (maybe I spelled it wrong, I SUCK at spelling. LOL!) is those seizure where the person stares out into space for a few minutes then comes...
Technically it is called a petit mal or absence seizure. I also have them. I however, have never been put on anything for them. Summer In a message dated...
My daughter had the grand mal seizures I believe. It's so frustrating that they won't do anything for her or even seem like they are trying to help us. I just...
Does anyone have an experience withe the Ditropan Patch that you are willing to share? The Dr has switched K from the liquid 3x's a day to the patch every...
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