Hi & welcome Sooner.I`m Jim from Kentucky.I`m 42 yr old with Spina Bifida..I also joined the group recently to hopefully meet new friends and learn things...
i was wondering if there were any adults with sb online now who could tell me what my options might be for procedures to deal with incontinency. i've been on...
Thanks John. I am going to look into some noise reducing headphones for my daughter. I am going to read up on the cochlear aspect as well. I know there is a...
Yeah I thought my daughter would outgrow it. when she was 2 it was coughing....we took her to restaurants and such and always had to leave because someone...
I suppose an OT can help check for it. My daughter used to go to OT and they never mentioned anything about her having a condition. She doesn't fit alot of the...
Have any of you taken a child with spina bifida and the fears of loud noises to disney world? I am taking my daughter there next week and I am curious if...
-Hi Jackie My daughter just had bladder neck closure surgery. A few years ago she had a surgery where they used her appendix to make a channel from her belly...
We took my son to Disney Land when he was 4. He did pretty good. Obviously we had to take the cues from him as far as what rides he could handle. If...
... I had a bladder augumentation done when I was real young..it's a surgery that enlarges the bladder with a piece of the intestine to help the bladder hold...
I had where they used a piece of my intestine to make a tube that attaches to my bladder and abdominal wall. I also had a bladder neck closure at 18, but would...
hi I am 25 and i fave spina bifida. i also have similar problem. ... From: jackie <gdaughter22@...> Subject: [Spina Bifida Central] Hi! I need HELP! ...
Thank-you for having me in your group. My daughter will soon turn 20 and she is in need of nurmerous things that I don't know where to look for. I would like...
Hello everyone, I have a daughter that is 2 and the doctor gave her a urodynamics test without her ditropan and said her bladder bothered him because she...
Hi Sooner,I live in Fort Mitchell, KY.It`s only about 3 miles from Cincinnati, OH.I work at Cincinnati Childrens Hospital.I`ve heard of Fort Campbell but I`m...
Hi, here's an idea you might want to consider. My daughter went to a rehab school when she was eighteen. This allowed her to be around other kids like her...
Hi, we took Sarah to Disney when she was about 6. I agree with Heather, we took my parents, and it did make it so much easier. Sarah would only ride a few of...
... Oh cool, I have a friend that lives not too far from Ohio either. Oh wow a children's hospital. That is really neat I love children! Oh well FT. Campbell...
Hello & good morning to you all! Hope everyone is having a good morning. I hope everyone has a good day as well. I just wanted to stop by & wish everyone a...
Hi there! Welcome to the group (this goes out to ALL the newbies too!) I can totally relate to you. I'm almost 27 years old and have the same questions and...
Vocational Rehab can also help with the funding of modifications. It however, just depends on that area. I had to fight to get van mods done for me. They can...
... You might try your own car dealership or a place that will modify a car for her...sometimes car dealerships can help you with that. That is how I got my...
Hello again everyone! I have just come from the Dr.s for myself (this time) and have found out that I do in fact have crohn's disease. (Yeah one more thing...
My body does not absorb folic acid properly & I have a 10 week old baby with SB. I Knew this before I got prego & took extra Folic acid & a baby asprin daily,...
Don't blame yourself!!!! Folic acid issues alone Do not cause SB! God chose u for a reason To be ur babies mom, there must be something special in u that God...
-Thank you Deana for your response.... It's nice to hear from someone who can actually relate. It's just that with all the ads and poster and acticles you see...
As a daughter with Spina Bifida, I would just like to say .......... It is definitely *Not* Your fault! I won't lie to you, my having SB has not been easy, and...
Heather- Have you ever been to Chicago for the Bladder and Bowel Stim program? I read the post about Disney and Daniel, and that you guys live in Texas, and...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
