Thanks Crystal! I know that I'm going to need help with things (like cooking, housework, etc) so if that is what I need to continue doing then that's what...
Hi my name is Jim,I`m a 42 year old male with Spina Bifida and I`m just looking to make new friends.Thank you !!! [Non-text portions of this message have...
Hi my name is Jim.I`m a 42 year old male with spina bifida.I am looking to meet new people.Thanks [Non-text portions of this message have been removed]...
It has been a long time since i was here, but i was wondering my son whom has spina bifida he is 11 years old now. he is going in for a c-ostomy has anyone had...
I have the mitrofanoff and ACE which is close to the same thing to the cecostomy. It is just made from intestine or appendix instead of a plastic tube like the...
Hey Jim..What level is your SB? I'm from NY, 43. ... in Fort Mitchell, KY. ,which is close to Cincinnati, OH.I work at Cincinnati Childrens Hospital in the...
Earlier today I recieved an i.m. from someone saying they are in this group. He said he doesn't have SB but is interested in disabled women in a sexual manner....
Hi, my name is Bobbie and I am a student nurse. I have talked to a few people on here and got some info on spina bifida, but my instructor says I need more....
Hi, my daughter had the bowel done when she was 11 and the bladder when she was 14. They were supposed to do them both at the same time, but the Doctor...
I just saw this one another site. It's a storybook about someone with Spina Bifida. I think it's helpful for kids to see a character in a story who has the...
Hi Julie,I`m not really sure what level I am.I`ve heard people talk about that,but don`t really know what the different levels are.Maybe you can help me with...
Jim, Where is your scar on your back? To: spinabifidacentral@yahoogroups.com From: jim.brinkman70@... Date: Wed, 4 Mar 2009 03:17:22 -0800 Subject: Re:...
Thanks, I love the story.? It would be good to share this with classmates of a child too, so they could better understand.? ... From: Heather Merrell...
I know this has been discussed on here a couple of times, but I was courious if someone could help me understand the good and bad with the Mace Procedure. My...
... My son and I are planning on going. We thought last year was very educational and he made alot of new friends. The only down side was that I thought that...
I had the ACE done about 12-13 years ago, so it is probably different now. For me they took a piece of intestine and used it for the tube and stoma. I also...
hi, my name is jackie, i've been a member of this group for a while, but i haven't posted much. i guess i was afraid that people would judge me because im 28...
Hey Jackie, I hope nobody judges you here for such a trivial thing. You probably have lots of opportunities in a Nursing Home that you wouldn't have...
Well there is the mitrofanoff where you can cath through your belly button. It was the best thing I ever did for myself. It is so easy. You just put a catheter...
thank you for your responses! and, for someone young like me, living in a nursing home sucks! anyway, do any adults with sb know how i can find a urologist who...
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