Hi heather: My name is jackie. Have you been untethered befor? I have been untethered 3 times and am now showing signs of being tethered again a year after...
Jackie
jpentland1@...
Feb 1, 2009 1:15 pm
6209
Sara, As usual these day, 'Yahell' has destroyed your longer hyperlink and turned them into normal text, making them meaningless. I wonder if it's worth...
... have no ... the ... despite ... something ... drugs ... and ... no ... bowel, ... a ... evil ... with ... to be ... and ... South ... the ... G'day John, ...
... 8 ... age ... all ... long ... if ... tired. ... me ... Hello Deb, I am a grandma and I love my grandchildren very much. I have a grandson who will be...
I am very excited about all the information I have received for the website recently. I have several product reviews coming up, and I will be editing some of...
Hi there, I was wondering if anyone needs drainage bags (for supra-pubic tubes and the like) or Flo-caths (with the hydration system) size 8 fr. and 10 fr....
Hi there, My son Alex (7) had bladder aug. in November and now needs another procedure because of scar tissue in his stoma and Mitrofanoff. Â He had to go down...
Sounds like the mitrofanoff is closing. It is fairly common. It could happen once or as many times as it wants. Summer In a message dated 2/2/2009 10:29:45...
I didn't have that issue, but my daughter Vanessa had her Mitro and ACE done on Oct. 17th 2008and her Ace works fine but on the 25th of this month she has to...
Jackie: I have had one tethered cord release.? It was done in 1976 when I was 11. (I was living in Pittsburgh at the time.)? It worked very well for me for...
Oh my goodness! I hope your kids get to feeling better soon...I know about the asthma and being sick, not fun! I pray that you stay well and strong! You are...
Hi Annie Beth, I love your website! There's so much great info. I wish I had something like that to go to when Sarah was growing up. We didn't even have...
Greetings all, I am the mother of Dominic an ornery 8 month old with Spina Bifida. He is L4 and lower with Chiari but no hydro.He was referred to as Rayschesis...
Hi Cheryl, Welcome! I've not heard of a case such as your sons, so I can't really help in that area, but you'll find lots of good information and really...
I am a mother of a son with Spina Bifida. I joined this group for a couple of reasons. One is to learn about new ideas, make new friends, I guess just to...
Marilyn, I have a 15 years old daughter. What I am wanting to ask, is how you were able to get your son to do for himself? See my daughter is a wheel chair....
Hi Lisa, Thats a hard one. Its so easy in the beginning to do everything for our child but then it comes back and bites you in the butt. I have to say that we...
Hi, Have you tried using an occpational therapist? One could help figure out ways she could start doing some of these things on her own, i.e. using a transfer...
Hey Lisa, My daughter is 22 years old. I just talked about addressing these issues very soon in my blog. Please bookmark it and read it, I think it will help...
Hi Marilyn, Our kids are about the same age. Sarah is 22. She has SB L5-T5, uses a wheelchair, and volunteers several days a week at her local high school. ...
Lisa, I'm John from Edinburgh, Scotland UK. You mention the fact that, at 15 your daughter hasn't quite got to grips with a full independent life. Firstly, as...
Crystal, There's some fab teen SB Groups on YahooGroups, the facility we're using here, for young folks with SB, that I'd thoroughly recommend, with the usual...
Hi:? I thought I'd jump in on this topic.? I'm a 43 yr. old mom who has SB myself.? I grew up in a family with 4 siblings (I'm the youngest.)? And while my mom...
My son is 7 years old and takes 15mg of oxybutynin a day for bladder pressure. He had a eurodynamics test today and his bladder only holds 5 ounces of urine...
I ended up having to have a bladder augmentation because of the reflux in the kidneys. Summer In a message dated 2/6/2009 5:20:02 P.M. Eastern Standard Time, ...
Hey Summer, I'll pass it along to her. I told her earlier that I found some people for her to talk to and she was sooo excited. I'm sure she'll be in contact...
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