Thanks, Annie Beth.............I'll read it more thoroughly later and get back to you!! Jenny **************New year...new news. Be the first to know what is...
I feel for you Amber. I am in the same boat ,, I have had 4 MRI's and the conclusion was, he wouldn't touch me with a 10 foot pole. He is the best guy in our...
I got mine on the 31st. Amber K. ... From: Sara Schneider To: spinabifidacentral@yahoogroups.com Sent: 1/1/2009 3:57:03 PM Subject: Re: [Spina Bifida Central]...
Hi Daryl, I've always had a little problem with back and leg pain, but I think that's mainly because I have a syrinx right above where my lesion is which is...
Hi Krista:? I'm Heather.? I'm a 43 yr. old mom with SB.? We have a?5 yr. old son.? We live in Northern CA.? Feel free to contact me to chat. [Non-text portions...
Wow we have a lot in common .. but I have a theory... lol. I will say to this point it has not been confirmed and doctors hate when you offer your own opinion...
HI, I haven't been on here in awhile. My son is 16 now and this board was so helpful when he was younger. We are looking to relocate in New Mexico. It will be...
It sounds like several of us are in the same boat.? I had my first cord release when I was 11.? Now it seems to be tethered again - I am losing function and...
... cord release when I was 11.? Now it seems to be tethered again - I am losing function and feeling?in my left leg and foot.? My balance is getting worse,...
It could. Not sure though. Summer In a message dated 1/2/2009 8:46:54 P.M. Eastern Standard Time, lisamarien1981@... writes: So does tethered cord have...
Lisa-- Found this page that sort of explains it. Btw, I still can't get into my Yahoo messenger!!! Jenny **************New year...new news. Be the first to...
I am finding the same thing ,, I am comforted by the fact I am not alone in my pain and frustration. Don't you just hate those words,,"I could make you...
Oh they can make you much worse if they do screw up. It happened to me. I was paralyzed a lot more then what I was before surgery. It isn't fun. Summer In a...
Hi I am new here and I have learned so much all ready reading the e- mails. I am 64 years old and was born with spina bifida . I can walk ok and my spin was...
... me. I ... alone in ... am having ... to do it ... kinda ... moved to ... Any SB ... patients, so I'm ... took a look at my MRI ... make you ... to be to ...
A lot...lol. Surgery was done when it shouldn't have been done. That was the biggest problem. 2 days after the surgery when my mom finally saw the surgeon he...
Yes, tethered cord is when the spinal cord gets caught on the scar tissue around your lesion.? It is often diagnosed when kids hit a growth spurt and the cord...
Darryl:? I've thought that too:??Just do the surgery, I'm not going to get any?better without taking the risk, and its better than withering away ----? But...
... Hi Debbie. I am 27 yrs old and was born with Spina Bifida. I am married as well and we have 2 children together, who don't have SB. I am interested in...
Hi My name is B.J. Reynolds. I am 28 years old. I have Spina Bifida since I was born. I am in a wheelchair all the time. I just wanted to introduce myself...
Knew a BJ some time ago who lived in Scranton PA where are u from? take care! Charlie in Connecticut! No Good Deed Goes Unpunished! ... From: bj_reynolds2001...
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